Models of care and the advanced practice nurse role in caring for children and adolescents with a cancer predisposition syndrome: a scoping review protocol.

Objective: This scoping review will examine the literature describing models of care, barriers and facilitators of care, and gaps in care delivery for children and adolescents with a cancer predisposition syndrome (CPS). It will also explore how advanced practice nurses contribute to the delivery of care for children and adolescents with a CPS.

Introduction: Cancer remains a leading cause of death in children and adolescents.

Feasibility of a prospective physiotherapy model of care during the intense treatment phase of childhood cancer (FITChild): A mixed methods design.

Background: Children diagnosed with cancer often develop significant physical treatment-related side effects. This study evaluated the feasibility of a targeted, proactive, individualised physiotherapy intervention programme for children with a recent cancer diagnosis.

Procedure: This feasibility study was a single-group mixed methods study, consisting of pre- and post-intervention assessment, followed by a survey and interviews of parents.

Evaluation of an In-Hospital Recreation Room for Hospitalised Children and Their Families.

Objective: Many children's hospitals have established 'recreation rooms' to help reduce distress among hospitalised children and families. We investigated recreation rooms in two Australian children's hospitals to determine: 1) families' first use of the room (including discovery and delays); 2) characteristics of families accessing the room; 3) parents' positive and negative associations with the room; and 4) parents' most and least valued aspects of the room.

Method: Using a concurrent mixed methods design, parents completed questionnaires (Restorative Experiences Tool, Parenting Stress Index-Short Form, Paediatric Quality of Life Inventory) and an optional interview.

Feasibility of clinical psychosocial screening in pediatric oncology: Implementing the PAT2.0.

This study examined the feasibility of implementing the Psychosocial Assessment Tool (PAT2.0) from the perspectives of families and health-care providers (HCPs). PAT2.

Living with hope and fear--the uncertainty of childhood cancer after relapse.

This study explored the experiences of families when a child with cancer relapses. The aim was to develop an understanding of the human actions and emotions that shape the experience of relapse, to question what influences the care provided at relapse, and to challenge current practices. Twelve families were involved in a critical ethnography exploring their child's relapse.

Exploring documentation of end-of-life care of children with cancer.

This article presents the findings of a study that explored documentation surrounding the end-of-life care of children with cancer. An in-depth history audit of 18 children with cancer, who died from disease progression at a single tertiary paediatric centre during 1999, was performed to explore the extent and the ways in which the shift from cure to palliation was reflected in the child's medical record. The study found that while physical aspects of care were documented there was little evidence of the human-to-human aspects of care or processes of decision-making when cure was no longer a possibility.