A qualitative exploration of the experiences of individuals with spinal cord injury participating in a community-based online intervention to support posttraumatic growth.

Purpose: To date, no evidence-based, community-based online group intervention has been designed specifically to enhance posttraumatic growth (PTG), quality of life (QoL), sense of meaning and purpose, and satisfaction with life following a spinal cord injury (SCI). This qualitative study aims to describe participants' experiences of participating in such a program.

Methods: Semi-structured interviews were conducted with 17 people with SCI and analysed using a thematic analysis approach.

Co-design of an intervention exploring meaning and purpose after spinal cord injury.

Purpose: Rebuilding a strong sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury. This project aimed to develop an intervention that used the concept of post-traumatic growth to foster a stronger sense of meaning and purpose in people with a spinal cord injury.

Methods: Using participatory action research methodology, the intervention was designed in an iterative process with health professionals and people with lived experience of spinal cord injury.

Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps.

The right of people with disability to enjoyment of the highest attainable standard of health without discrimination on the basis of disability is enshrined in the United Nations Convention on the Rights of Persons with Disabilities (CRPD). Among its obligations as a signatory to the CRPD, Australia is required to collect appropriate information, including statistical and research data, to inform development and implementation of policies to give effect to the Convention. In this commentary, we first describe how the International Classification of Functioning, Disability and Health (ICF) conceptual model of disability can be operationalised in statistical data collections, with a focus on how this is achieved in key Australian data sources such that people with disability can be identified as a population group.

Exploring well-being services from the perspective of people with SCI: A scoping review of qualitative research.

Objective: Well-being after spinal cord injury is affected by a range of factors, many of which are within the influence of rehabilitation services. Although improving well-being is a key aim of rehabilitation, the literature does not provide a clear path to service providers who seek to improve well-being. This study aimed to inform service design by identifying the experience and perspective of people with SCI about interventions targeting their well-being.

Disability and the Complexity of Choice in the Ethics of Abortion and Voluntary Euthanasia.

In the polarized debates about abortion and voluntary euthanasia, disability advocates, who normally align with left-wing social forces, have tended to side with conservative and religious voices in expressing concerns about the impact of technological and sociopolitical developments on disabled futures. This paper draws on the social model of disability and the virtue ethics tradition to explain the alignment between the religious and disability perspectives, and the theory of transformative choice to highlight the limits and biases of the pro-choice logic. Yet, it also recognizes the inherent contradiction of disabled advocates taking a paternalistic position against the personal agency of women and people facing terminal illnesses.

The experience and perspective of people with spinal cord injury about well-being interventions: a systematic review of qualitative studies.

Purpose: Promoting well-being is a key aim of rehabilitation. The intentional design of interventions to address well-being requires an understanding of the factors that affect this complex phenomenon. A growing body of qualitative literature has identified determinants that people with SCI report affect their well-being.

The Disability and Wellbeing Monitoring Framework: data, data gaps, and policy implications.

Objective: To develop a framework and indicators to monitor inequalities in health and the social determinants of health for Australians with disability.

Methods: The development drew on existing frameworks and input from people with lived experience of disability.

Results: The Disability and Wellbeing Monitoring Framework has 19 domains.

Grieving my broken body: an autoethnographic account of spinal cord injury as an experience of grief.

Purpose: For good reason, the trajectory of contemporary research and therapy into rehabilitation following spinal cord injury (SCI) has moved away from focusing on the pathology of depression, to highlight the contribution of resiliency, optimism, and hope to long-term well-being. This article complements this literature, exploring the analogous links between the losses of SCI and the experiences of the grief that accompanies the death of a loved one.

Method: The article uses autoethnography, drawing on the authors' writing about his own experiences as a C5 (incomplete) quadriplegic, to identify a correlation between the stages/symptoms of grief and the journey of rehabilitating from an SCI.