Publications by authors named "Saskia Spillekom-Van Koulil"

Article Synopsis
  • Hidradenitis suppurativa (HS) can greatly impact patients' quality of life due to its association with psychological issues like anxiety and depression, often intensified by stigmatization related to physical appearance.
  • A study involving 135 HS patients from 22 dermatology clinics in Europe found significant levels of perceived stigmatization, which correlated with disease duration, itchiness, and depression symptoms.
  • The research emphasizes the need for comprehensive management of HS, including addressing psychological well-being and access to mental health support for better patient outcomes.
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Introduction: Skin cancer is currently the most common cancer type worldwide, and numbers are rapidly increasing. To improve primary prevention, individualised prevention strategies may be of interest as this enhances the chance of long-term behavioural change. The Sun Exposure and Protection Index (SEPI), previously validated in multiple languages, is a tool that could help identify individuals with risky behaviour and tailor interventions to the person's propensity to change.

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Skin diseases are often accompanied by physical, emotional and social problems, which may negatively impact health-related quality of life and result in skin-related distress. It is essential to identify patients with skin-related distress within the short time-window of an outpatient dermatological visit. Therefore the one-question screening tool, the Distress Thermometer adjusted for skin conditions, was validated in a cross-sectional questionnaire study.

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Background: Health-related quality of life (HRQoL) assessment in patients with acne is recommended by several national guidelines. There are several acne-specific HRQoL instruments.

Objectives: Participants of the European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on QoL and Patient Oriented Outcomes (PO) and Acne, Rosacea, and Hidradenitis Suppurativa (ARHS) agreed to scrutinize aspects of existing acne-specific HRQoL instruments for their relevance in international study.

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Background: Body dysmorphic disorder (BDD) is a common psychiatric disorder associated with high costs for healthcare systems as patients may repeatedly ask for different, often not effective, interventions. BDD symptoms are more prevalent in patients with dermatological conditions than in the general population, but there are no large sample studies comparing the prevalence of BDD symptoms between patients with dermatological conditions and healthy skin controls.

Objectives: To compare the prevalence of BDD symptoms between patients with different dermatological conditions and healthy skin controls and to describe sociodemographic, physical and psychological factors associated with BDD symptoms to identify patients who may have a particularly high chance of having this condition.

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Background: Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care.

Objective: To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.

Methods: A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions.

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Article Synopsis
  • Itch is a common and complex symptom that affects mental health in dermatological patients, as highlighted in a study involving over 3,500 patients across 13 European countries.
  • There are significant links between itch and mental health issues, with increased odds of clinical depression, suicidal thoughts, and economic difficulties among patients experiencing itch.
  • The study findings emphasize that itch not only worsens the quality of life (lower health status scores) but also stresses the need for comprehensive care that includes both dermatological and mental health support for affected patients.
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Background: Quality of life (QoL) data are lacking in children with infantile hemangioma (IH) and their parents/caregivers. Available data are conflicting.

Objectives: To determine QoL of (parents of) patients with IH in the proliferative phase related to IH-severity and activity.

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Objective: Online cognitive-behavioral therapy (iCBT) is effective in supporting patients' self-management. Since iCBT differs from face-to-face CBT on several levels, proper training of therapists is essential. This paper describes the development and evaluation of a therapist training based on theoretical domains that are known to influence implementation behavior, for an iCBT for chronic pain.

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A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are negatively affected. However, little is known about the availability of such support in Europe for people whose appearance is in any way different to 'the norm'. This survey of 116 psychosocial specialists from 15 European countries, working with a range of patient groups, has shown a tendency for specialists to prioritise Cognitive-behavioural-based approaches, amongst a wide range of other approaches and interventional techniques.

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Chronic somatic conditions, such as psoriasis, arthritis psoriatica and rheumatoid arthritis, have a large impact on patients' lives. Tailored therapist-guided internet-based cognitive-behavioural therapy (ICBT) has been shown to be effective in improving physical and psychological well-being in these patients. Two cases are presented here, in order to provide an in-depth illustration of the course and content of this novel treatment and to investigate the therapeutic alliance in an online treatment.

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Background: Concern has been raised about the potential long-term effects of propranolol treatment for infantile hemangioma (IH).

Objectives: We sought to assess psychologic (social, emotional, behavioral, and executive) functioning in children treated with propranolol for IH.

Methods: Twenty-seven patients with IH (6.

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For patients with chronic pain conditions such as rheumatoid arthritis (RA), who experience elevated levels of distress, tailored-guided internet-based cognitive-behavioral treatment may be effective in improving psychological and physical functioning, and reducing the impact of RA on daily life. A multicenter, randomized controlled trial was conducted for RA patients with elevated levels of distress as assessed by a disease-specific measure. The control group (n = 71) received standard care and the intervention group (n = 62) additionally received an internet-based tailored cognitive-behavioral intervention.

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A relationship between the intensity of itch and psychological factors like stress, coping, anxiety, and depression has often been shown in patients with skin diseases. Moreover, the biopsychosocial model of chronic itch nicely summarizes how psychological factors can contribute to a worsening or improvement of chronic itch. Thus, it is reasonable to consider psychological interventions in the treatment of chronic itch.

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Objective: Patients with somatic conditions, such as psoriasis, frequently suffer from high burden of their disease in daily life and might benefit from internet-based cognitive behavioral therapy (ICBT) tailored to their adjustment problems. The aim of this multicenter randomized controlled trial was to examine the effects of therapist-guided, individually tailored ICBT in a clinical sample of patients with psoriasis.

Methods: A total of 131 patients with psoriasis, who were screened for a psychological risk profile, were randomized to either care as usual (CAU, n = 66) or ICBT in addition to CAU (n = 65).

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Background: Long-term adverse effects of propranolol treatment for infantile hemangioma (IH) in young children have been suggested.

Objective: To compare growth and development in children treated with propranolol for IH with nontreated healthy controls.

Methods: Eighty two (73%) children with IH aged 43 to 51 months treated with propranolol for 6 months or longer, and without other developmental risk factors, were recruited (cases) and matched with 4 twin counterparts and 78 children from a community-based cohort (control subjects).

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Background: Patients with chronic somatic conditions face unique challenges accessing mental health care outside of their homes due to symptoms and physical limitations. Internet-based cognitive behavioral therapy (ICBT) has shown to be effective for various psychological conditions. The increasing number of recent trials need to be systematically evaluated and quantitatively analyzed to determine whether ICBT is also effective for chronic somatic conditions and to gain insight into the types of problems that could be targeted.

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Introduction: Psychological stress may alter immune function by activating physiological stress pathways. Building on our previous study, in which we report that stress management training led to an altered self-reported and cortisol response to psychological stress in patients with rheumatoid arthritis (RA), we explored the effects of this stress management intervention on the immune response to a psychological stress task in patients with RA.

Methods: In this study, 74 patients with RA, who were randomly assigned to either a control group or a group that received short stress management training, performed the Trier Social Stress Test (TSST) 1 week after the intervention and at a 9-week follow-up.

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Introduction: To describe and illustrate in a case-study design the development and design of a multidisciplinary training program for outpatient children and adolescents with psoriasis and their parents.

Methods: For the development of the program, a steering group was assembled, systematic semi-structured interviews were held and the literature was reviewed.

Results: Aim of the training program was to strengthen patients and their parents in coping with and diminishing psoriasis-related problems in an outpatient setting.

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