Publications by authors named "Sarah R Carlson"
The impact of long-term services and supports on the quality of life of adults with intellectual and developmental disabilities (IDD) is not well understood given the highly complex nature of researching this topic. To support future research addressing this topic, we conducted a systematic literature review of studies addressing outcomes of adults with IDD receiving long-term services and supports. Results of this review describe current outcomes for adults with IDD who receive long-term services and supports and can be used to inform program evaluation, policy development, and future research.
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- Many U.S. states use the Supports Intensity Scale-Adult Version (SIS-A) to determine funding for long-term services and supports.
- During the COVID-19 pandemic, states switched to virtual SIS-A assessments, raising concerns about how this change might affect scores and funding.
- The study found that while the method of assessment (in-person vs. virtual) did influence SIS-A scores, the overall impact was found to be minimal and not practically significant.
Although adult siblings often fulfill caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD) and report needing support, little intervention research has been conducted with adult siblings of individuals with IDD. The purpose of this pilot study was to examine the preliminary outcomes of a leadership and support program for adult siblings of individuals with IDD. Pre, post and follow-up survey data indicated that the program correlated with increased sibling connectedness and empowerment.
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