Patients' and caregivers' perspectives on healthcare navigation in Central Indiana, USA after brain injury.

Little research has documented the experiences of patients with traumatic brain injury (TBI) and their caregivers in navigating health systems for TBI care. In this qualitative study, we conducted semi-structured interviews with 62 participants (34 patients with moderate or severe TBI and 28 caregivers) from Central Indiana. Data were collected from January to September 2016 and analysed using a constructivist grounded theory approach.

Access to health services for moderate to severe TBI in Indiana: patient and caregiver perspectives.

Objective: We examined patient and caregiver experiences of health services for moderate to severe traumatic brain injury (TBI) in Indiana. The objective was to provide an understanding of their lived experiences and to inform policies and practices for health services delivery for TBI.

Methods: We conducted qualitative, semi-structured interviews with 62 participants (34 patients and 28 caregivers).