Publications by authors named "Sarah Cm Lee"
Article Synopsis
- Motor neurone disease (MND) causes significant symptom burden among patients, but there's limited understanding of their specific needs and experiences, especially among palliative care providers.
- This study evaluated 102 MND patients, revealing they reported a median of 17 symptoms, with motor and functional issues being the most common; severe symptoms were notably higher in those receiving palliative care and those near end-of-life.
- The findings suggest the need for a specialized assessment tool for MND symptoms and further research to develop effective treatment guidelines tailored to the unique symptom profiles of these patients.*
Background: Huntington's Disease (HD) is an incurable, progressive neuro-degenerative disease. For patients with HD access to palliative care services is limited, with dedicated Neuro-Palliative Care Services rare in Australia. We discuss the experiences of and benefits to a patient with late-stage HD admitted to our Neuro-Palliative Care service.
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