It's difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia.

Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents' need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet's improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement.

Illness perceptions and their relation to physical activity in children and adolescents with hemophilia.

Hemophilia is a rare bleeding disorder in which illness perceptions have seldom been studied. Illness perceptions are important in predicting patients' behavior. Due to the risk of bleeding and joint damage, healthcare professionals often discourage some physical activities.

Usability Testing of an Interactive Communication Tool to Help Children Express Their Cancer Symptoms.

Objective: Sisom is an interactive computer software program that allows children to rate the severity of their cancer symptoms. The study objectives were to describe the usability of Sisom in terms of ease of use, usefulness, and aesthetics and to offer suggestions for improvement.

Method: A multisite, descriptive study was conducted to describe the usability of Sisom.

Understanding adherence to treatment and physical activity in children with hemophilia: The role of psychosocial factors.

The objective of this study was to identify psychosocial factors to explain intentions of children and adolescents with hemophilia to adhere to recommendations for self-care. Twenty-four patients with hemophilia A and B, aged 6-18 years old, and their parents, completed a survey. Measures assessed factors from the theory of planned behavior, physical activity, and medical treatment adherence.

Linguistic Validation of an Interactive Communication Tool to Help French-Speaking Children Express Their Cancer Symptoms.

Sisom is an interactive tool designed to help children communicate their cancer symptoms. Important design issues relevant to other cancer populations remain unexplored. This single-site, descriptive, qualitative study was conducted to linguistically validate Sisom with a group of French-speaking children with cancer, their parents, and health care professionals.

Motivational techniques to improve self-care in hemophilia: the need to support autonomy in children.

Background: In pediatric hemophilia, caregivers are facing unique challenges to adherence and self-care in children and adolescents with hemophilia. Hemophilia treatment requires adequate prophylaxis and on-demand treatment, as well as a clear behavioral strategy to limit risk-taking in terms of physical exercise and diet. Medication adherence rates of hemophilia patients have been reported to decrease during late childhood and adolescence.

Enhancing Cognitive Function Using Perceptual-Cognitive Training.

Three-dimensional multiple object tracking (3D-MOT) is a perceptual-cognitive training system based on a 3D virtual environment. This is the first study to examine the effects of 3D-MOT training on attention, working memory, and visual information processing speed as well as using functional brain imaging on a normative population. Twenty university-aged students were recruited and divided into a training (NT) and nonactive control (CON) group.