Publications by authors named "Sarah A Johaningsmeir"
Purpose: This study examined the impact of caring for children with medical complexity (CMC) and high resource use on family quality of life (QoL).
Methods: Families of CMC enrolled in a complex care program completed the PedsQL Family Impact module (PedsQL FIM) and Healthcare Satisfaction module (PedsQL HCS) at enrollment then 1 and 2 years after enrollment. Tertiary center resource utilization and staff care coordination time were collected for the two years.