The role of Hospital-Based Cancer Registries (HBCRs) as information systems in the delivery of evidence-based integrated cancer care: a scoping review.

Cancer is a leading cause of mortality, with 10 million deaths in 2020. With the number of people impacted by cancer projected to increase, a better-integrated cancer care is needed. Evidence suggests that Hospital-Based Cancer Registries (HBCRs) that collect administrative and clinical data could improve integrated and equitable evidence-based care.

Patients' and Health Care Professionals' Expectations, Experience, and Perception of the Outcomes of Various Washout Policies in Preventing Catheter-associated Complications: Qualitative Study of the CATHETER II Trial.

The CATHETER II trial is expected to determine if and which policy for prophylactic catheter washout on a weekly basis improves the outcome of care for people living with a long-term catheter. By exploring the views and experiences of both the trial participants and health care professionals in relation to the trial delivery and outcomes, the CATHETER II qualitative study can provide context to the trial findings, clarify the fidelity of the intervention, and inform translation of the intervention into routine policy and practice.

How Do We Meet the Supportive Care and Information Needs of Those Living With and Beyond Bladder Cancer?

This perspective paper presents the case for adopting a new approach to the design and delivery of supportive care for those with bladder cancer. It is our assertion that the design and delivery of supportive care for those diagnosed with bladder cancer needs to (1) build on existing research and available tools and (2) address current limitations due to lack of use of said tools, lack of understanding of research and needs, lack of a shared language, and method of assessment and evaluation. This, we argue, can be achieved through a network-based approach (1) focussed on the structure, process, and outcome of supportive care.

The relationship between social support and health-related quality of life in patients with antiphospholipid (hughes) syndrome.

Objective: Antiphospholipid (Hughes) syndrome (APS) is recognised as a systemic autoimmune disease defined by recurrent thromboembolic events and/or pregnancy morbidity. Little is known about the psychological burden of this long-term condition. This study aims to explore the relationship between social support and health-related quality of life (HRQoL) in patients with APS.

Menopause and work: an electronic survey of employees' attitudes in the UK.

Objectives: This study explored women's experiences of working through menopausal transition in the UK. It aimed to identify the perceived effects of menopausal symptoms on working life, to outline the perceived effects of work on menopausal symptoms, and to provide recommendations for women, healthcare practitioners and employers.

Methods: An electronic questionnaire was distributed to women aged 45-55 in professional, managerial and administrative (non-manual) occupations in 10 organisations.

Urological cancer care pathways: development and use in the context of systematic reviews and clinical practice guidelines.

Background: Making healthcare treatment decisions is a complex process involving a broad stakeholder base including patients, their families, health professionals, clinical practice guideline developers and funders of healthcare.

Methods: This paper presents a review of a methodology for the development of urological cancer care pathways (UCAN care pathways), which reflects an appreciation of this broad stakeholder base. The methods section includes an overview of the steps in the development of the UCAN care pathways and engagement with clinical content experts and patient groups.