Toward the European Health Data Space: The IMPaCT-Data secure infrastructure for EHR-based precision medicine research.

Background: Art. 50 of the proposal for a Regulation on the European Health Data Space (EHDS) states that "health data access bodies shall provide access to electronic health data only through a secure processing environment, with technical and organizational measures and security and interoperability requirements".

Objective: To identify specific security measures that nodes participating in health data spaces shall implement based on the results of the IMPaCT-Data project, whose goal is to facilitate the exchange of electronic health records (EHR) between public entities based in Spain and the secondary use of this information for precision medicine research in compliance with the General Data Protection Regulation (GDPR).

Oocyte provision as a (quasi) social market: Insights from Spain.

The provision of oocytes plays an important role in human fertility treatments. Spain alone performs half of oocyte provision cycles in the European Union whilst all other European countries face an oocyte shortage. How do Spanish fertility clinics manage to match the increasing domestic and foreign demand for female oocytes? Adopting a weak performativity approach and drawing insights from interviews carried out with 20 fertility clinic representatives, this study suggests that Spanish clinics are successful thanks to an egg provision system designed as a (quasi) social market.

Beyond the security paradox: Ten criteria for a socially informed security policy.

This article investigates the normative and procedural criteria adopted by European citizens to assess the acceptability of surveillance-oriented security technologies. It draws on qualitative data gathered at 12 citizen summits in nine European countries. The analysis identifies 10 criteria, generated by citizens themselves, for a socially informed security policy.

Public assessment of new surveillance-oriented security technologies: Beyond the trade-off between privacy and security.

As surveillance-oriented security technologies (SOSTs) are considered security enhancing but also privacy infringing, citizens are expected to trade part of their privacy for higher security. Drawing from the PRISE project, this study casts some light on how citizens actually assess SOSTs through a combined analysis of focus groups and survey data. First, the outcomes suggest that people did not assess SOSTs in abstract terms but in relation to the specific institutional and social context of implementation.