Background: Research on child protective services (CPS) is impeded by a lack of high-quality structured data. Crucial information on cases is often documented in case files, but only in narrative form. Researchers have applied automated language processing to extract structured data from these narratives, but this has been limited to classification tasks of fairly low complexity.
View Article and Find Full Text PDFObjective: Children and adolescents with rare diseases face significant barriers when accessing healthcare. We aimed to assess and predict these barriers and investigate associations with health-related quality of life (HRQoL).
Method: We conducted a cross-sectional survey of Swiss parents (N = 189) of children with rare diseases including the Barriers to Care Questionnaire (BCQ), containing six barriers and the Pediatric Quality of Life Inventory (PedsQL).
Experiments as Code (ExaC) is a concept for reproducible, auditable, debuggable, reusable, & scalable experiments. Experiments are a crucial tool to understand Human-Building Interactions (HBI) and build a coherent theory around it. However, a common concern for experiments is their auditability and reproducibility.
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