Publications by authors named "S Behrens-Spraggins"
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Synopsis of recent research by authors named "S Behrens-Spraggins"
- S Behrens-Spraggins' recent research focuses on Charcot-Marie-Tooth disease (CMT), aiming to assess patient-reported disease burden, create disease-specific wearable sensor algorithms, and establish normative data for sensory function measures in affected individuals.
- In the study titled "Patient-reported disease burden in the Accelerate Clinical Trials in Charcot-Marie-Tooth Disease Study," the CMT Health Index was utilized to evaluate the disease's impact from the patient's perspective, involving 215 participants in clinical outcome assessments.
- The research also addresses the challenges faced in recruiting participants for an international rare disease clinical trial study during the COVID-19 pandemic, and showcases the potential of wearable technology to enhance future clinical trials for CMT by providing important activity and mobility metrics.
