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Objective: This article stems from the synthesis of four research studies in anthropology of health, around perinatality and severe epilepsies, with a view to propose a reflection at the interface of the notions of uncertainty, "self-statements" and TPE. The role of storytelling is questioned in the context of pathologies with high uncertainties, as much on a diagnostic as on a therapeutic and social level. A better understanding of storytelling is indeed a central identity and epistemological issue in the development of an adapted TPE system.

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Introduction: This dossier brings together different proposals presented during the closing conference of the West Syndrome research program: construction of knowledge and singularity of family experiences (Fam-West). It was devoted to the therapeutic education of the patient (TPE) and its possible deployment in the context of the management of rare diseases.

Aim Of The Study: Today, the communication approach of the common formal TPE could be qualified as informational.

Networks as culture: understanding and accounting for risks within networks of medico-social actors.

The anthropological part of the present research project addresses the issue of risk and uncertainties relating to perinatality and disability, and draws from the discourses of professionals in a perinatal network in the French Lorraine region. From an anthropological point of view, it is necessary to determine how and to what extent the views of professionals determine the network's management policies. The place conferred to 'the user' in these representations is one of several important issues to be analysed in order to gain better understanding of the management of relationships that result from it.

[Social and cultural representations in epilepsy awareness].

Representations relating to epilepsy have evolved over the centuries, but the manifestations of epilepsy awaken archaic images linked to death, violence and disgust. Indeed, the generalised epileptic seizure symbolises a rupture with the surrounding environment, "informs it", through the loss of social codes which it causes. The social and cultural context, as well as medical knowledge, influences the representations of the disease.