Publications by authors named "Rowan Hearn"
Article Synopsis
- Motor neurone disease (MND) causes significant symptom burden among patients, but there's limited understanding of their specific needs and experiences, especially among palliative care providers.
- This study evaluated 102 MND patients, revealing they reported a median of 17 symptoms, with motor and functional issues being the most common; severe symptoms were notably higher in those receiving palliative care and those near end-of-life.
- The findings suggest the need for a specialized assessment tool for MND symptoms and further research to develop effective treatment guidelines tailored to the unique symptom profiles of these patients.*
Background: Neuropalliative care is a newly-defined subspeciality bringing specific aspects of fields of neurology and palliative care together to better meet the complex care needs of people with progressive neurological diseases. Examining these needs would help provide guidance about developing relevant models of care and identify gaps in research knowledge.
Aim: To identify current models and approaches to neuropalliative care for people with progressive neurological diseases and the priorities for future research work.