Objective: Adolescents and young adults (AYA) with sickle cell disease (SCD) experience high rates of acute care utilization and increased morbidity. At this high-risk time, they also face the need to transition from pediatric to adult services, which, if poorly coordinated, adds to heightened morbidity and acute care utilization. The study objective was to characterize the feasibility, acceptability, and short-term efficacy of a protocolized transition navigator (TN) intervention in AYA with SCD.
View Article and Find Full Text PDFCommunity Ment Health J
January 2022
Context: Many governments have publicly released healthcare data, which can be mined for insights about disease conditions, and their impact on society.
Methods: We present a big-data analytics approach to investigate data in the New York Statewide Planning and Research Cooperative System (SPARCS) consisting of 20 million patient records.
Findings: Whereas the age group 30-48 years exhibited an 18% decline in mental health (MH) disorders from 2009 to 2016, the age group 0-17 years showed a 5.
Background And Objectives: Despite recommendations supporting human papillomavirus (HPV) vaccination, pediatric vaccination rates remain suboptimal in the United States; lack of tools to support provider counseling is one barrier. We sought to evaluate HPV-related counseling materials for readability, suitability, and content, and assess parent perceptions of materials, using a health literacy perspective.
Methods: A systematic search was conducted for written materials developed for HPV vaccination counseling by examining state Department of Health Web sites and associated links to local and national organizations.
J Pediatr Adolesc Gynecol
August 2017
Study Objective: Examination of the association of sexual orientation to the sexual practices and health behaviors of high school girls in New York City (NYC).
Design, Setting, And Participants: Data were drawn from the 2013 Youth Risk Behavior Surveillance System survey of public high school students in grades 9-12 in NYC.
Interventions: None.
J Pediatr Adolesc Gynecol
June 2016
Study Objective: In the United States, teen pregnancy rates are declining. However, the United States still has the highest teen pregnancy rate among high-income countries. Understanding factors that predict discontinuation of effective contraception might help to further decrease teen pregnancy.
View Article and Find Full Text PDFBackground: Engagement in HIV care helps to maximize viral suppression, which in turn, reduces morbidity and mortality and prevents further HIV transmission. With more HIV cases than any other US city, New York City reported in 2012 that only 41% of all persons estimated to be living with HIV (PLWH) had a suppressed viral load, whereas nearly three-quarters of those in clinical care achieved viral suppression. Thus, retaining PLWH in HIV care addresses this central goal of both the US National HIV/AIDS Strategy and Governor Cuomo's plan to end the AIDS epidemic in New York State.
View Article and Find Full Text PDFObjective: To assess current practices of New York State pediatricians as they transition youth with special health care needs to adult-oriented medical care.
Methods: A survey of New York State pediatricians included 6 critical steps from 2002 consensus statement, 11 essential steps adapted from recent literature, and questions targeting age of starting transition and availability of transition policy.
Results: Of 181 respondents, only 11% have a transition policy.
J Acquir Immune Defic Syndr
November 2013
One in 5 people living with HIV are unaware of their status; they account for an estimated 51% of new infections. HIV transmission can be reduced through a "Test and Treat" strategy, which can decrease both viral load and risk behaviors. However, linkage of newly diagnosed HIV-positive persons to care has proved challenging.
View Article and Find Full Text PDFJ Prim Care Community Health
April 2012
Objectives: To determine from adolescents using health care their: 1) perceptions of barriers to obtaining health services, 2) views on how to overcome the barriers and 3) views on how to create an adolescent-friendly primary care practice.
Design: Six focus group interviews.
Methods: Adolescents 11-21 years old from three health centers in the Bronx were recruited.
Given the current status of HIV infection in youth in India, developing and implementing HIV education and prevention interventions is critical. The goal for School-based Teenage Education Program (STEP) was to demonstrate that a HIV/AIDS and alcohol abuse educational program built with specific cultural, linguistic, and community-specific characteristics could be effective. Utilizing the Train-the-Trainer model, the instructors (17-21 years) were trained to present the 10 session manualized program to primarily rural and tribal youth aged 13-16 years in 23 schools (N = 1,421) in the northern state of Himachal Pradesh in India.
View Article and Find Full Text PDFThe relationship between socioeconomic status (SES) and health changes as a society develops. In developed countries, high SES is associated with better health, but in developing countries, high SES is associated with poorer health. However, measuring SES is difficult in countries like India, where the traditional class and caste system are interwoven and complex.
View Article and Find Full Text PDFNorth India is considered a low knowledge and low prevalence setting according to the recent National AIDS Control Organization survey regarding HIV/AIDS. As more than one third of the population in India is young adults and adolescents, reaching and educating them is key for prevention programs and a healthier future. School systems provide an ideal situation to impart this awareness and reach adolescents and young adults.
View Article and Find Full Text PDFIntroduction: With the rising threat of HIV in India, youth are an important group to reach for prevention education. This pilot study tested the efficacy of STEP (School-based Teenage Education Program focusing on HIV Prevention) for school children.
Method: This pilot study randomized 25 schools in Mumbai to receive STEP (N = 1846).
The purpose of this paper is to present validation data on the Events in Care Screening Questionnaire (ECSQ), which was designed to identify the needs and concerns of people living with HIV/AIDS (PLWHA) in nine specific domains: adherence to medical instructions; medical problems; specialty and inpatient hospital care; preventive health care and screening and behavioral health; sexual risk behavior; family planning; psychological symptoms; substance use; and life circumstances and demands. The ECSQ is the anchor for a more comprehensive measure called "The Dynamics of Care," and was administered in the context of a longitudinal study to evaluate New York State's HIV Special Needs Plan (HIV SNP), a Medicaid managed care model for PLWHA. Participants in the study, which began in March 2003 and closed recruitment in January 2007, were NYC PLWHA who were enrolled in either a Medicaid HIV SNP or Fee-For-Service plan.
View Article and Find Full Text PDFBackground: Patient perceptions of and satisfaction with care have become important indicators of the quality of services and the relationship of services to treatment outcomes. However, assessment of these indicators continues to be plagued by measurement problems, particularly the lack of variance in satisfaction data. In this article, we present a new approach to better capture patient perceptions of experiences in care, the Dynamics of Care (DoC) assessment.
View Article and Find Full Text PDFThe study aim was to identify covariates of smoking status and readiness to quit that encompassed key sociodemographic and health status variables, health-related quality of life, drug use and unprotected sex, and tobacco use variables in a cohort of low-income persons living with HIV. We also examined the impact of HIV diagnosis on smoking cessation. The sample (N = 428) was mostly male (59%) and Black (53%) or Hispanic (30%), and had a high school education or less (87%).
View Article and Find Full Text PDFThe measurement of posttraumatic stress disorder (PTSD) is critically important for the identification and treatment of this disorder. The PTSD Checklist (PCL; F. W.
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