Publications by authors named "Rosa Reed-Berendt"
Article Synopsis
- The initiative aimed to engage children affected by cancer, survivors, families, and healthcare professionals to identify and prioritize research questions that could shape future studies on childhood cancer.
- An online survey gathered over 1,200 potential questions, which were then refined and shortlisted through surveys and workshops with participants, resulting in a final consensus on the Top 10 priorities.
- The most significant concern identified was the need for more effective and less burdensome treatments for children with cancer, emphasizing a focus on improving patient care and outcomes.
Background: Previous priority setting exercises have sought to involve children, but in the final reporting, it is evident that few children had been engaged through the process. A primary aim in the Children's Cancer Priority Setting Partnership was to find out from children what they want research to focus on. We report on our experience to inform methods of engagement with children in future James Lind Alliance Priority Setting Partnerships and similar exercises.
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- Young people with cancer often face psychological difficulties, particularly low mood and depression, but there's limited research on their experiences and treatment needs.
- This qualitative study involved interviews with 19 young cancer patients to explore their feelings about low mood, coping strategies, and suggestions for improving support services.
- The analysis revealed themes such as the challenges of adolescence during illness, the social impacts of cancer, and a desire for better understanding and support regarding their emotional experiences.
Purpose: This is the first UK multi-centre case-controlled study with follow-up in excess of 10 years to report the neurocognitive, academic and psychological outcomes of individuals diagnosed with a brain tumour in early childhood. Children enrolled into the UKCCSG CNS 9204 trial, diagnosed with intracranial ependymoma when aged ≤ 36 months old, who received a primary chemotherapy strategy to defer or avoid radiotherapy, were recruited.
Methods: Outcomes of those who relapsed and subsequently received radiotherapy (n = 13) were compared to those enrolled who did not relapse (n = 16), age-matched controls-diagnosed with solid non-central nervous system (SN-CNS; n = 15) tumours or low-grade posterior fossa pilocytic astrocytoma (PFPA; n = 15), and normative data.
Purpose: Cerebellar mutism is a serious neurosurgical complication after posterior fossa surgery, but the cause, incidence and outcome remain incompletely defined. The aim of this paper was to identify and review all reports of this phenomenon to better delineate and improve the evidence base.
Methods: A systematic search and retrieval of databases was conducted using advanced search techniques.
Objective: To retrieve and review all the relevant literature describing the administration of melatonin to treat impaired sleep in children following acquired brain injury (ABI).
Methods: A systematic search and retrieval of the literature was conducted using advanced search techniques. The retrieval identified 589 papers, seven of which were relevant.