Publications by authors named "Ronne Pater"
Article Synopsis
- * A scoping review assessed existing literature on PROMs in NMDs, following specific guidelines, and found 190 PROMs evaluated in 247 studies, mainly disease-specific, with a focus on physical functioning.
- * Results showed validity was the most examined measurement property, yet many PROMs lacked thorough evaluation of properties like responsiveness; there's a need for more research on PROMs related to social functioning in NMDs.
This workshop aimed to develop recommendations for psychological interventions to support people living with slowly progressive neuromuscular disorders (NMD). The workshop comprised clinicians, researchers, people living with NMD and their relatives. First, participants considered the key psychological challenges presented by NMD and the impact of NMD on relationships and mental health.
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