Use and evaluation of an individually tailored website for counselees prior to breast cancer genetic counseling.

This article explores the use and evaluation of a pre-visit website which aims to prepare counselees who are the first in their family to request breast cancer genetic counseling. This website E-info gene(ca) provides computer-tailored information and a blank question prompt sheet (QPS) on which counselees can formulate their questions for the consultation. The objectives of this study are: first, to assess which factors influence the use of E-info gene(ca), including the duration of site and page views, the influence of topic sequence in the menu bar on the sequence of page views, and the relation between website use and the use of the QPS; second, to explore counselees' evaluations of E-info gene(ca) and relations with counselee characteristics.

Development of E-info gene(ca): a website providing computer-tailored information and question prompt prior to breast cancer genetic counseling.

This article describes the stepwise development of the website 'E-info gene(ca)'. The website provides counselees in breast cancer genetic counseling with computer-tailored information and a question prompt prior to their first consultation. Counselees generally do not know what to expect from genetic counseling and they tend to have a passive role, receiving large amounts of relatively standard information.

Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology.

Background: The purpose of this article is to describe and evaluate the methodology of online focus group discussions within the setting of paediatric oncology.

Methods: Qualitative study consisting of separate moderated asynchronous online discussion groups with 7 paediatric cancer patients (aged 8-17), 11 parents, and 18 survivors of childhood cancer (aged 8-17 at diagnosis).

Results: All three participant groups could be actively engaged over a one-week period.