Publications by authors named "Robyn Boyle"
Purpose: Sensorineural hearing loss (SNHL) is associated with intellectual and academic declines in children treated for embryonal brain tumors. This study expands upon existing research by examining core neurocognitive processes that may result in reading difficulties in children with treatment-related ototoxicity.
Patients And Methods: Prospectively gathered, serial, neuropsychological and audiology data for 260 children and young adults age 3 to 21 years (mean, 9.
Objective: We investigated the 5-year postsurgical developmental trajectory of working memory (WM) in children with medulloblastoma using parent and performance-based measures.
Method: This study included 167 patients treated for medulloblastoma. Serial assessments of WM occurred at predetermined time points for 5 years.
Background: The aim of this study was to prospectively examine the effects of hearing loss and posterior fossa syndrome (PFS), in addition to age at diagnosis and disease risk status, on change in intellectual and academic outcomes following diagnosis and treatment in a large sample of medulloblastoma patients.
Methods: Data from at least 2 cognitive and academic assessments were available from 165 patients (ages 3-21 years) treated with surgery, risk-adapted craniospinal irradiation, and 4 courses of chemotherapy with stem cell support. Patients underwent serial evaluation of cognitive and academic functioning from baseline up to 5 years post diagnosis.
Purpose: The current study prospectively examined processing speed (PS), broad attention (BA), and working memory (WM) ability of patients diagnosed with medulloblastoma over a 5-year period.
Patients And Methods: The study included 126 patients, ages 3 to 21 years at diagnosis, enrolled onto a collaborative protocol for medulloblastoma. Patients were treated with postsurgical risk-adapted craniospinal irradiation (n = 36 high risk [HR]; n = 90 average risk) followed by four cycles of high-dose chemotherapy with stem-cell support.
Purpose: To examine longitudinal parent-reported social outcomes for children treated for pediatric embryonal brain tumors.
Patients And Methods: Patients (N=220) were enrolled onto a multisite clinical treatment protocol. Parents completed the Child Behavior Checklist/6-18 at the time of their child's diagnosis and yearly thereafter.
Article Synopsis
- The study focuses on how parents cope with their child's diagnosis of an embryonal brain tumor, tracking their responses over time.
- At diagnosis, parents primarily sought guidance, with younger parents doing so significantly more than older ones, and their coping methods evolved to include acceptance and seeking alternatives.
- Emotional discharge was also prevalent, especially among younger fathers, highlighting the ongoing need for clear communication and support from healthcare professionals throughout the treatment journey.