Background: Medical educational researchers face frustration with IRBs for activities that formerly were exempt from review or were not treated as biomedical research with patients. The authors sought to identify methods for improving relationships between IRBs and medical education researchers.
Method: The authors conducted interviews with medical school representatives about factors leading to relationships in which all parties feel that their concerns are being met, subjects are appropriately protected, and that the progress of evaluation or research activities is not unnecessarily inhibited.
Background: Teaching family-centered health care is an important facet of medical education. Families are increasingly being used as faculty to teach first-person family-centered care.
Purpose: To elucidate what medical students are learning from their family visits.
Educ Health (Abingdon)
February 2004
Stroke remains a leading killer and cause of disability in the United States. The incidence of stroke appears to be increasing while new advances in the management of stroke continue to emerge. These realities emphasize the need to communicate advances to health care providers and consumers.
View Article and Find Full Text PDFAs the demographics of the populations of affected individuals have changed, systems of care have needed to adapt to be responsive to client needs. This article examines client satisfaction data from seven national demonstration projects funded to enroll individuals from traditionally underserved groups and help them access services using different strategies. Data on client satisfaction ratings were related to indicators of traditionally underserved status, including demographic characteristics, behaviors, and other risk factors using the data modeling method of Exhaustive CHAID (Chi-squared Automatic Interaction Detector).
View Article and Find Full Text PDFThe demographic, behavior, and background characteristics of 4,804 participants in 17 national demonstration projects for HIV medical and/or psychosocial support services were coded for an index of "service need" or possible under-representation in the traditional healthcare system. Fifteen items were coded including status as a person of color, lack of private insurance, unemployment/disability, problem drinking, crack cocaine use, heroin use, other illicit drug use, less than 12 years of education, criminal justice system involvement, children requiring care while the patient receives services, sex work, being the sex partner of an injection drug user, unstable housing, primary language not English, and age less than 21 or over 55 years. Most (87.
View Article and Find Full Text PDFThis article explores the relationships of HIV risk factors, service needs, and vulnerabilities to health-related quality of life in a sample of 1,371 participants newly enrolled into 13 innovative HIV/AIDS treatment model service demonstration projects. These projects targeted services to traditionally underserved populations. Eight distinct quality of life clusters of HIV patients were used in this analysis along with patient self-identified risk factors.
View Article and Find Full Text PDFHome Health Care Serv Q
March 2001
This article develops a typology of 2,038 participants in 13 innovative HIV/AIDS treatment model service demonstration projects targeted to traditionally underserved populations. The typology is based on self-reported health-related quality of life levels. Eight clusters were identified that classify HIV/AIDS patients based on their reported health-related quality of life.
View Article and Find Full Text PDFA semistructured interview was conducted with 69 stakeholders in three university-based health care projects that were funded to provide an integrated continuum of care for persons living with HIV/AIDS. Data from the key informant interviews yielded composite indicators of familiarity with the service model, the importance of the elements in the service model, and the perceived quality of services provided by these innovative HIV service demonstration projects. Ratings of service quality were related to ratings of the respondent's knowledge of the service demonstration project, the importance of the various elements in the service continuum, and several indicators of stakeholder characteristics using the data modeling method of Exhaustive CHAID (Chi-squared Automatic Interaction Detector).
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