Methods and initial findings of the Observational Study of Ostomy Consumers Registry.

Background: Longitudinal patient-reported data are limited for people living with an ostomy.

Purpose: The Observational Study of Ostomy Consumers (OSO) registry collects data from individuals living with an ostomy.

Methods: Self-reported data were collected via repeated electronic surveys completed by adults living with an ostomy in the United States (US) and United Kingdom (UK).