Validation of Family Management Measure for the Brazilian culture.

Etjective: To validate the Family Management Measure (FaMM) for Brazilian culture.

Method: Quantitative research excerpt, following the recommendations for validation studies. The data presented refer to the last stage of the process.

The experience of grandmothers of children with cancer.

Objective: to understand, from grandmothers' perspectives, the experience of having a grandchild with cancer.

Method: qualitative study, guided by philosophical hermeneutics. Eight grandmothers of children who had finished an oncology treatment participated in this study.

[Factors influencing Intensive Care Units nurses in end-of-life decisions].

Objective: To identify the factors that influence the Intensive Care Unit nurse in the decision-making process in end-of-life situations.

Method: Ethnographic case study, which used the theoretical framework of medical anthropology. Data were collected through semi-structured interviews with 10 nurses.

The family's experience of the child and/or teenager in palliative care: fluctuating between hope and hopelessness in a world changed by losses.

Objectives: to understand the family's experience of the child and/or teenager in palliative care and building a representative theoretical model of the process experienced by the family.

Methodology: for this purpose the Symbolic Interactionism and the Theory Based on Data were used. Fifteen families with kids and/or teenagers in palliative care were interviewed, and data were collected through semi-structured interviews.

Palliative and End-of-Life Ethical Dilemmas in the Intensive Care Unit.

Critical care nurses and advanced practice registered nurses frequently face bioethical dilemmas in clinical practice that are related to palliative and end-of-life care. Many of these dilemmas are associated with decisions made concerning continuing, limiting, or withdrawing life-sustaining treatments. The purpose of this article is to describe common ethical challenges through case study presentations and discuss approaches that critical care nurses and advanced practice registered nurses in collaboration with the interdisciplinary team can use to address these challenges.

Negotiated reorienting: a grounded theory of nurses' end-of-life decision-making in the intensive care unit.

Background: Intensive care units (ICUs) focus on treatment for those who are critically ill and interventions to prolong life. Ethical issues arise when decisions have to be made regarding the withdrawal and withholding of life-sustaining treatment and the shift to comfort and palliative care. These issues are particularly challenging for nurses when there are varying degrees of uncertainty regarding prognosis.

The practice of nurses caring for families of pediatric inpatients in light of Jean Watson.

Objective To know the facilities and the difficulties of nurses in caring practice of hospitalized children's families in the light of Jean Watson's Theory of Human Caring. Method It was used the descriptive qualitative approach. The data collection was conducted in three stages: presentation of theoretical content; engagement with families in the light of Watson's theory; and semi-structured interview with 12 pediatric nurses.

The mothers' experiences in the pediatrics hemodialysis unit.

Introduction: The need for hemodialysis exerts a deep impact on the lives of children and adolescents with end-stage kidney chronic failure and their mothers, who predominantly assume the care related to treatment. The hemodialysis requires that the mother accompanies the child during sessions at least three times a week and, since it is not a healing practice, they also experience the waiting for a kidney transplant, attributing different meanings to this experience.

Objective: To understand what it means for the mothers to accompany the child in a Pediatric Hemodialysis Unit and to construct a theoretical model representing this experience.

Nurses' autonomy in end-of-life situations in intensive care units.

Background: The intensive care unit environment focuses on interventions and support therapies that prolong life. The exercise by nurses of their autonomy impacts on perception of the role they assume in the multidisciplinary team and on their function in the intensive care unit context. There is much international research relating to nurses' involvement in end-of-life situations; however, there is a paucity of research in this area in Brazil.

[The use of the Family Management Style Framework to evaluate the family management of liver transplantation in adolescence].

Objective: To understand the family management experience of liver transplantation during adolescence based on the Family Management Style Framework(FMSF).

Method: This is a case study that used the FMSF as theoretical framework and the hybrid model of thematic analysis as methodological reference. The case presented is from an adolescent's family that lives in Salvador, Bahia.

[Nursing concepts and theories].

The theory framework of nursing science is built in a dynamic process that arises from practice and is reproduced through research, mainly by analysis and development of concepts and theories. This study presents a theory reflection on nursing knowledge construction and points out subsidies for future studies in the area. The interrelation among theory, research, and clinical practice is required for continuous development of nursing as a profession and science.

The 15-minute family interview: a family health strategy tool.

The 15-minute family interview is a condensed form of the Calgary Family Assessment and Intervention Models (CFAM and CFIM) that aims to contribute to the establishment of a therapeutic relationship between nurses and family and to implement interventions to promote health and suffering relief, even during brief interactions. This study investigated the experience of nurses from the Family Health Strategy (FHS) who used the 15-minute interview on postpartum home. The qualitative research was conducted in three stages: participants' training program, utilization of the 15-minute family interview by participants, and interviews with nurses.

Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases.

Objectives: to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language.

Method: the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest.

Results: these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation.

[Life after childhood cancer: experiences of the survivors].

Late effects of cancer treatment in children, adolescents and young adults may be physical, social, and emotional, with effects on their quality of life. Through an ethnographic study, we sought to identify the impact on survivors' quality of life caused by late effects of treatment of childhood cancer. Twenty-one survivors participated in the study with aged between 10 and 29 years.

: a model for understanding the expressions of the bereaved.

The aim of this work is to provide an overview of the key features of the expressions of grief. Grief is a response to loss or anticipated loss. Although universal, its oral and nonverbal expression varies across cultures and individuals.

The process of end-of-life care delivery to the families of elderly patients according to the Family Health Strategy.

Objective: To understand the process of end-of-life care delivery to the families of elderly patients according to a Family Health Strategy (FHS) team, to identify the meanings the team attributes to the experience and to build a theoretical model.

Method: Symbolic Interactionism and Grounded Theory were applied. Fourteen professionals working in an FHS located in a country town in the state of São Paulo were interviewed.

[Dignified death for children: perceptions of nurses from an oncology unit].

The objective of this study was to identify the meaning of dignified death and the interventions employed by nurses in pediatric oncology to promote dignified death for children. We used Symbolic Interaction Theory as the theoretical framework and narrative research methods. The data were collected from eight nurses in the pediatric oncology unit of a public hospital in Sao Paulo through semi-structured interviews.

Family management style framework and its use with families who have a child undergoing palliative care at home.

Palliative care settings in many countries acknowledge families as their prime focus of care, but in Brazil, to date, researchers have devoted scant attention to that practice setting. In this article, we report the findings of a study that explored how families define and manage their lives when they have a child or adolescent undergoing palliative care at home. Data included individual semistructured interviews with 14 family members of 11 different families.

[Approaching the family in the Family Health Strategy: an integrative literature review].

Today there is consensus regarding the idea that there is mutual influence between the health-disease conditions of family members and family union. Establishing health practice centered on family care is a way to revert the hegemonic disease-centered model, which divides individuals and separate them from their context and socio-cultural values. The Family Health Strategy (FHS) was implemented to reorganize the Brazilian public health system (Sistema Único de Saúde), an each of its teams becomes acquainted with the true situation of the families for which they are responsible.

Dignified death: concept development involving nurses and doctors in pediatric intensive care units.

The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs.

[Religious beliefs, illness and death: family's perspectives in illness experience].

The objectives of this study were to identify predominant themes in religion, illness and death in the life histories of families and examine the relationship between religion creeds, illness and death in the discourse of families that have an ill person. The theoretical framework used in this study was Symbolic Interactionism and the method was Oral History. Participants were seventeen families with nine different religions, who had experienced the death of a relative.

[The experience of suffering: stories told by hospitalized children].

The objective of this study was to learn about the experience of suffering in hospitalized school-aged children. The methodological strategy used was narrative inquiry, and the Model of Suffering as the theoretical framework. Participants were 14 children.

The relationship between religion, illness and death in life histories of family members of children with life-threatening diseases.

This qualitative study aimed to get to know the relationship between the experiences of families of children with a life-threatening disease and their religion, illness and life histories. The methodological framework was based on Oral History. The data were collected through interviews and the participants were nine families from six different religions who had lived the experience of having a child with a life-threatening disease.

[The use of the Calgary Model for assessment of families of the aged in clinical practice].

This qualitative study has as objective to present the experience to assessment of the families of dependent aged under the systemic approach. The Calgary Model was used as theoretical framework and as methodological strategy the case study. The data had been collected with five families of dependent older person, from September of December of 2005, by means of the instrument elaborated previously.

[Dignified death for children: concept analysis].

The purpose of this study was to describe the background, attributes and consequences of the concept of dignified death for children. The concept analysis strategy was used to evaluate the 40 articles found in journals in the medical and nursing areas, which studied or focused on the dignified death of children. The attributes of the dignified death concept include: quality of life, child- and family-centered care, specific knowledge about palliative care, shared decisions, relieving the child's suffering, clear communication, helpful relations and a welcoming environment.