People with disabilities (PWD) comprise a significant part of the population yet experience some of the most profound health disparities. Among the greatest barriers to quality care are inadequate health professions education related to caring for PWD. Drawing upon the expertise of health professions educators in medicine, public health, nursing, social work, and physician assistant programs, this forum showcases innovative methods for teaching core disability skills and concepts grounded in disability studies and the health humanities.
View Article and Find Full Text PDFThis paper introduces an innovative curricular approach-the Health Humanities Portrait Approach (Portrait Approach)-and its pedagogical tool-the Health Humanities Portrait (HHP). Both enable health professions learners to examine pressing social issues that shape, and are shaped by, experiences of health and illness. The Portrait Approach is grounded in a set of "critical portraiture" principles that foster humanities-driven analytical skills.
View Article and Find Full Text PDFJ Med Humanit
March 2019
This introduction provides an overview to a special issue on Critical Healing, which draws on queer theory, disability studies, postcolonial theory, and literary studies to theorize productive engagements between the clinical and cultural aspects of biomedical knowledge and practice. The essays in this issue historicize and theorize diagnosis, particularly diagnosis that impacts trans health and sexuality, homosexuality, and HIV/AIDS transmission. The essays also address racialization, disability, and colonialism through discussions of fiction, film, theoretical memoir, and comics, as well as biomedical discourse and knowledge.
View Article and Find Full Text PDFSince the emergence of the field in the 1970s, several trends have begun to challenge the original assumptions, claims, and practices of what became known as the medical humanities. In this article, the authors make the case for the health humanities as a more encompassing label because it captures recent theoretical and pedagogical developments in higher education such as the shift from rigid disciplinary boundaries to multi- and interdisciplinary inquiry, which has transformed humanities curricula in health professions. Calling the area of study health humanities also underscores the crucial distinction between medicine and health.
View Article and Find Full Text PDFPhysicians' narratives of their own experiences of illness can be a kind of empathic bridge across the divide between a professional healer and a sick patient. This essay considers ways in which physicians' narratives of their own and family members' experiences of cancer shape encounters with patients and patients' experiences of illness. It analyzes ethical dimensions of physicians' narratives (such as those by Atul Gawande, Siddhartha Mukherjee, and Paul Kalanithi) and of reflective writing in medical education.
View Article and Find Full Text PDFThe medical or health humanities are in essence a form of advocacy, a means of addressing a problem of underrepresentation. They focus on suffering, rather than pathology, and on sociocultural understandings of illness and disability, rather than a narrow biomedical perspective. The health humanities thus analyse and attempt to recalibrate the power imbalance in healthcare.
View Article and Find Full Text PDFThis essay discusses critical approaches to culture, difference, and empathy in health care education through a reading of Junot Diaz's "Wildwood" chapter from the 2007 novel The Brief Wondrous Life of Oscar Wao. I begin with an analysis of the way that Diaz's narrative invites readers to imagine and explore the experiences of others with subtlety and complexity. My reading of "Wildwood" illuminates its double-edged injunction to try to imagine another's perspective while recognizing the limits to-or even the impossibility of-that exercise.
View Article and Find Full Text PDFDuring the past decade, "reflection" and "reflective writing" have become familiar terms and practices in medical education. The authors of this article argue that the use of the terms requires more thoughtfulness and precision, particularly because medical educators ask students to do so much reflection and reflective writing. First, the authors discuss John Dewey's thoughts on the elements of reflection.
View Article and Find Full Text PDFMed Humanit
December 2010
People with disabilities are a large minority that disproportionately seeks medical care. However, disability is relatively neglected in medical education and practice, and disabled people experience troubling differences and even disparities in healthcare. Practitioners can help improve healthcare for disabled people through disability studies, a multi-disciplinary field of enquiry that draws on the experiences and perspectives of people with disabilities to address discrimination.
View Article and Find Full Text PDFJ Clin Ethics
October 2010
By acquiring an understanding of the cultural meaning of deafness and acting as a bridge to resources and opportunities, clinicians may better serve children and parents.
View Article and Find Full Text PDFJ Med Humanit
September 2010
The nursing profession's emphasis on empathy as essential to nursing care may undermine nurses' power as a collective and detract from perceptions of nurses' analytical skills and expertise. The practice of empathy may also obscure and even compound patients' suffering when it does not fully account for their subjectivity. This essay examines the relation of empathy to women's agency and explores the role empathy plays in obscuring rather than empowering the suffering other, particularly people who are disabled, through a close reading of Edith Wharton's 1907 novel, The Fruit of the Tree, and through discussions of empathy and sympathy from literary and disability studies.
View Article and Find Full Text PDFPerspect Biol Med
September 2010
Autobiographical narratives of illness and disability are influential in popular and medical discourses of illness and disability, in part because these narratives represent illness and disability within a sociocultural context, intersecting with other categories of difference. Clinicians can benefit patients through a critical understanding of the formal and social conventions that shape illness and disability narratives and the effect these conventions can have on the lived experience of illness and disability. I analyze the 2003 edition of Lucy Grealy's Autobiography of a Face to illustrate these socio-narrative conventions, especially in light of an afterword that significantly revises the ending to Grealy's narrative.
View Article and Find Full Text PDFBackground: Discussions of empathy in health care offer important ways of enabling communication and interpersonal connection that are therapeutic for the patient and satisfying for the physician. While the best of these discussions offer valuable insights into the patient-physician relationship, many of them lack an action component for alleviating the patient's suffering and emphasize the physician's experience of empathy rather than the patient's experience of illness.
Methods: By examining educational methods, such as reflective writing exercises and the study of literary texts, and by analyzing theoretical approaches to empathy and suggestions for clinical practice, this article considers how to mindfully keep the focus on what the patient is going through.
J Med Humanit
December 2007
While organ transplantation has been established in the medical imagination since the 1960s, this technology is currently undergoing a popular re-imagination in the era of global capitalism. As transplantation procedures have become routine in medical centers in non-Western and developing nations and as organ sales and transplant tourism become increasingly common, organs that function as a material resource increasingly derive from subaltern bodies. This essay explores this development as represented in Korean filmmaker Park Chan-wook's 2002 Sympathy for Mr.
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