Publications by authors named "Rano Zakirova Engstrand"

Very little is known about the status of autism research in Central Asia. Through the library databases, we identified and reviewed 11 scientific studies conducted with autistic people and their families in five Central Asian countries-Kazakhstan, Kyrgyzstan, Tajikistan, Turkmenistan, and Uzbekistan. Of the 11 studies, 10 were conducted in Kazakhstan and 1 in Uzbekistan.

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This initial open feasibility trial reports on feasibility and preliminary effectiveness of the manualized, group-based psychoeducational intervention for grandparents of preschool-aged children with ASD provided by the outpatient habilitation services in Stockholm, Sweden. One hundred and twenty non-custodial grandparents participated in a 6-h intervention program. The study demonstrated good feasibility: 114 (95%) grandparents completed both pre- and post-intervention measures and evaluations and reported high intervention acceptability.

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Background: Research suggests that families' knowledge and cultural perceptions of autism spectrum disorder (ASD), and beliefs about its etiology and prognosis, can affect parents' recognition of the first signs of autism in their children and influence help seeking and treatment decisions.

Objective: This study investigated explanatory models of autism among parents of young children with ASD in the multicultural context of Sweden.

Method: Seventeen parents from diverse cultural, ethnic and linguistic backgrounds participated in semi-structured interviews.

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Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by the public disability services in Stockholm.

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Purpose: The objective of this study was to test the utility of the International classification of functioning, disability and health--children and youth's (ICF-CY) Environmental Factors component by classifying family interview data from two ethnically and culturally diverse--Kyrgyz and Uzbek--families that have children with various types of disabilities in Kyrgyzstan, Central Asia.

Methods: The eco-cultural family interview (EFI) was used to interview four Kyrgyz and four Uzbek families. The obtained data were analysed by using manifest content analysis; identified units of meaning named as 'EFI items' and 'EFI concepts' were then linked to the ICF-CY's codes by application of ten linkage rules.

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