Publications by authors named "Rachel Jenkins"

Article Synopsis
  • * It investigates the feasibility and acceptability of the Spiritual Care Assessment and Intervention framework (SCAI-Peds), specifically adapted for home-based chaplaincy support for these caregivers.
  • * The findings indicate that SCAI-Peds was well-received by both caregivers and chaplains, suggesting the potential for home-based interventions to foster reflection and emotional support, prompting the need for further research beyond this initial pilot.
View Article and Find Full Text PDF

Unlabelled: Home-based hospice and/or palliative care (HBHPC) is an important and increasingly utilized aspect of care for children with serious conditions-those with high mortality risk, which either impacts their quality of life or carries a significant caregiver burden. Provider home visits are a core feature; however, the travel time and human resource allocation are significant challenges. Balancing the appropriateness of this allocation requires further characterization of the value of home visits to families and identification of the value domains of HBHPC for caregivers.

View Article and Find Full Text PDF

Background: Driving commercial vehicles requires intact visuo-cognitive skills. Approximately 13% of all fatal motor vehicle crashes in the United States involve commercial drivers. The ability to accurately predict risk factors for unsafe commercial driving is essential for public safety.

View Article and Find Full Text PDF

Children and adolescents with serious conditions may benefit from simultaneous hospice and palliative care. Although the Affordable Care Act covers concurrent care, uptake has been limited. Limited descriptive data exist on receiving simultaneous community hospice and pediatric palliative care.

View Article and Find Full Text PDF
Article Synopsis
  • - COVID-19 has led to over 3.5 million deaths and more than 160 million infections, with many individuals experiencing neurological issues, including loss of smell, seizures, and strokes, which can lead to long-term cognitive and neuropsychiatric problems regardless of the severity of respiratory symptoms.
  • - The article explores potential links between COVID-19 and neurological symptoms, particularly focusing on Alzheimer's disease and related dementias, while examining factors like inflammation and viral mechanisms that may cause such issues.
  • - A global research effort, the CNS SC2 consortium, is underway to standardize methods for studying the long-term effects of COVID-19 on brain health, with data collection occurring across multiple countries to improve overall understanding.
View Article and Find Full Text PDF

Background: Sternal wound infections are a rare but life-threatening complication of cardiothoracic surgery. Prior literature has supported the use of negative pressure wound therapy to decrease sternal wound infections and promote healing. This study sought to determine whether closed incision negative pressure therapy reduced wound infection and improved outcomes in cardiothoracic surgery.

View Article and Find Full Text PDF

Background: Poor social circumstances can induce, exacerbate and prolong symptoms of mental health conditions, while having a mental health condition can also lead to worse social outcomes. Many people with mental health conditions prioritise improvement in social and functional outcomes over reduction in clinical symptoms. Interventions that improve social circumstances in this population should thus be considered a priority for research and policy.

View Article and Find Full Text PDF

Introduction/aims: Most patients with Duchenne muscular dystrophy (DMD) in the US are diagnosed at about age 5 years. Some adolescents and young adults (AYAs) with DMD are now living into their fourth decade, yet AYAs and caregivers are frequently unprepared to address changes in goals of care due to disease progression. The hypothesis-generating research question was how AYAs with DMD and their caregivers understand the relationship between physical changes and the need to change goals of care.

View Article and Find Full Text PDF

Living well at home with multimorbidity - A project on the contribution of advanced practice nursing in home health care Multimorbidity has increased among the elderly, leading to loss of autonomy, lower quality of life, complex treatment plans and higher rates of complications and hospitalisations. Functional impairment and challenging therapy management make the use of home health nursing services essential. Experience in primary care and in hospitals has shown that Advanced Practice Nurses (APN) lead to a better quality of care for patients with multimorbidity.

View Article and Find Full Text PDF

To design high-quality home-based hospice and palliative care (HBHPC) systems, it is imperative to understand the perspectives of parents whose children enroll in HBHPC programs. The goal of this project was to identify and define parent/caregiver-prioritized domains of family-centered care in HBHPC by performing semistructured interviews of parents/caregivers ("parents") across Ohio whose children have received HBHPC. We hypothesized that the 10 provider-prioritized domains and their definitions, as identified in our previous research, would be modified and augmented by parents for application in the pediatric HBHPC setting.

View Article and Find Full Text PDF

Professor Angela Märten speaks to Rachel Jenkins, Commissioning Editor Angela Märten earned her PhD at Humboldt University of Berlin, Germany, in 2000, after working for several years as an oncology nurse. Upon completion of her PhD, she assumed responsibility for Phase I trials and translational research for the University Hospital of Bonn, Germany. In 2002, the University Hospital of Bonn appointed her as Assistant Professor for Experimental Haematology and Oncology.

View Article and Find Full Text PDF

The Lancet Commission summarises some of the history of mental health concepts, recent developments in scientific understanding, mental health programmes and threats to progress, and proposes a way forward. Although ostensibly aiming to reframe global mental health within the paradigm of sustainable development, in practice it has taken a narrower academic perspective rather than a generic approach to health and social sector reform, leading to much less of an integrated implementation focus than would have been useful.

View Article and Find Full Text PDF

Background: Both malaria and mental disorders are associated with immune changes. We have previously reported the associations between malaria and mental disorders. We now report associations between malaria, mental disorders and immunity.

View Article and Find Full Text PDF

The need for support for good mental health is enormous. General support for good mental health is needed for 100% of the population, and at all stages of life, from early childhood to end of life. Focused support is needed for the 17.

View Article and Find Full Text PDF