Publications by authors named "Rachel Chepesiuk"
Harmonizing data on correlates of sleep in children within and across neurodevelopmental disorders: lessons learned from an Ontario Brain Institute cross-program collaboration.
Patrick G McPhee Anthony L Vaccarino Sibel Naska Kirk Nylen Jose Arturo Santisteban Rachel Chepesiuk
Front Neuroinform
May 2024
There is an increasing desire to study neurodevelopmental disorders (NDDs) together to understand commonalities to develop generic health promotion strategies and improve clinical treatment. Common data elements (CDEs) collected across studies involving children with NDDs afford an opportunity to answer clinically meaningful questions. We undertook a retrospective, secondary analysis of data pertaining to sleep in children with different NDDs collected through various research studies.
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- Health research is often planned by scientists or companies without asking what people with epilepsy really need, so a special group worked together to find out what those needs are.
- They used questionnaires to gather opinions from people with epilepsy and their caregivers across Canada and then ranked the most important questions for research.
- The final list highlights key topics, like finding out more about genetic causes and treatment options, making sure future research focuses on what matters most to the epilepsy community.