Publications by authors named "R Gorinski"
Article Synopsis
- This study investigates the survival disparities in infants with critical congenital heart disease (CCHD) in New Zealand, highlighting that European infants have better outcomes compared to Indigenous Māori and Pasifika infants.
- Researchers conducted semi-structured interviews with 45 participants, including parents and healthcare professionals, to explore their experiences with CCHD healthcare.
- Key findings revealed that minoritized groups face lower healthcare quality, the system is under-resourced for the needs of grieving parents, and there's a need for better engagement of these families in decision-making processes, indicating a need for systemic improvements.
The experience of diagnosis, decision-making and management in critical congenital heart disease is layered with complexity for both families and clinicians. We synthesise the current evidence regarding the family and healthcare provider experience of critical congenital heart disease diagnosis and management. A systematic integrative literature review was conducted by keyword search of online databases, MEDLINE (Ovid), PsycINFO, Cochrane, cumulative index to nursing and allied health literature (CINAHL Plus) and two journals, the Journal of Indigenous Research and Midwifery Journal from 1990.
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