Publications by authors named "R Cusatis"
Article Synopsis
- The CIBMTR's 2023 summary slides now include data on CAR-T therapy and patient-reported outcomes (PROs), enhancing the understanding of transplantation trends.
- The CIBMTR launched a PRO data collection protocol in August 2020 to gather insights from adult hematopoietic cell transplantation (HCT) and CAR-T recipients at participating centers.
- As of September 2023, PRO data from 993 patients across 25 centers have been collected and integrated with clinical data to improve patient care and support comprehensive research.
Leveraging Hematopoietic Cell Transplant Data and Biorepository Resources at the Center for International Blood and Marrow Transplant Research to Improve Patient Outcomes.
Transplant Cell Ther
September 2024
Article Synopsis
- Hematopoietic cell transplantation (HCT) has seen significant advancements over time, influenced by research data from the Center for International Blood and Marrow Transplant Research (CIBMTR).
- The CIBMTR Biorepository maintains a diverse inventory of biospecimens, which can be utilized for further analyses to enhance understanding and practices in HCT.
- Ongoing collaboration and utilization of these resources are aimed at improving patient outcomes and expanding research opportunities in the field of HCT.
Objective: Understand barriers and facilitators to follow-up care for infants with bronchopulmonary dysplasia (BPD).
Methods: Qualitative study of parents and clinical stakeholders caring for infants with BPD. The interview guide was developed by a mother of a former 23-week preterm infant, neonatologist, pulmonologist, nurse, and qualitative researcher.
Background: The Center for International Blood and Marrow Transplant Research (CIBMTR) provides a 1-year overall survival calculator to estimate outcomes for individual patients before they undergo allogeneic hematopoietic cell transplantation (HCT) to inform risk. The calculator considers pre-HCT clinical and demographic characteristics, but not patient-reported outcomes (PROs). Because pre-HCT PRO scores have been associated with post-HCT outcomes, the authors hypothesized that adding PRO scores to the calculator would enhance its predictive power.
View Article and Find Full Text PDFBackground: Decisions for how to resolve infertility are complex and may lead to regret. We examined whether couples and individuals who sought a consultation from a reproductive specialist for infertility later expressed decisional regret about their family-building choices and whether regret was associated with parental role, family-building paths, or outcomes.
Methods: This longitudinal mixed methods study included women and their partners who completed a questionnaire prior to their initial consultation with a reproductive specialist and 6 years later.