Background: Hospice patients with dementia are at increased risk for live discharge and long lengths of stay (>180 days), causing patient and family caregiver stress and burden. The location and timing of clinician visits are important factors influencing whether someone dies as expected, in hospice, or experiences a live discharge or long length of stay.
Objective: Examine how home hospice and nurse visit frequency relate to dying in hospice within the Medicare-intended 6-month period.
A majority of hospice care is delivered at home, with significant caregiver involvement. Identifying factors associated with caregiver-reported quality measures could help improve hospice care in the United States. To identify correlates of caregiver-reported quality measures: burden, satisfaction, and quality of end-of-life (EoL) care in home hospice care.
View Article and Find Full Text PDFSymptoms (e.g., pain, shortness of breath, and fatigue) at the end of life (EoL) are common.
View Article and Find Full Text PDFContext: Rates of psychological symptoms for patients with serious illness are high, but there has been limited research investigating psychological symptoms at the very end of life (EOL).
Objectives: To better understand the prevalence, severity, and correlates of psychological distress at the very EOL.
Methods: This retrospective cross-sectional study utilized caregiver proxy interviews.
Crises that occur in home hospice care affect family caregivers' satisfaction with care and increase risk of disenrollment. Because hospice care focuses on achieving a peaceful death, understanding the prevalence and nature of crises that occur in this setting could help to improve end-of-life outcomes. To ascertain the prevalence and nature of, as well as factors associated with crises in the home hospice setting as reported by family caregivers.
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