Last months of life of people with intellectual disabilities: A UK population-based study of death and dying in intellectual disability community services.

Background: Population-based data are presented on the nature of dying in intellectual disability services.

Methods: A retrospective survey was conducted over 18 months with a sample of UK-based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population.

End-of-life care in intellectual disability: a retrospective cross-sectional study.

Background: Adults with intellectual disability (ID) experience inequality in access to healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at the end of life and how these compare with the general population are unknown.

Aim: To describe the end-of-life care outcomes for adults with ID living in residential care in the UK using the VOICES-SF questionnaire and compare these with the general population.