Effectiveness and cost of recruiting healthy volunteers for clinical research studies using an electronic patient portal: A randomized study.

Introduction: It is not clear how to effectively recruit healthy research volunteers.

Methods: We developed an electronic health record (EHR)-based algorithm to identify healthy subjects, who were randomly assigned to receive an invitation to join a research registry via the EHR's patient portal, letters, or phone calls. A follow-up survey assessed contact preferences.

Electronic medical record integration with a database for adult congenital heart disease: Early experience and progress in automating multicenter data collection.

Background: The adoption of electronic health records (EHR) has created an opportunity for multicenter data collection, yet the feasibility and reliability of this methodology is unknown. The aim of this study was to integrate EHR data into a homogeneous central repository specifically addressing the field of adult congenital heart disease (ACHD).

Methods: Target data variables were proposed and prioritized by consensus of investigators at five target ACHD programs.