Publications by authors named "Paula Robeson"

Article Synopsis
  • The study focuses on aiding Children with Medical Complexity (CMC) as they transition to adult healthcare, addressing gaps in support and coordination that negatively impact their care.
  • PITCare is a randomized controlled trial involving 154 CMC and their caregivers, assessing an intensive transition support program that connects patients with a multidisciplinary team for two years post-18.
  • Outcomes will include successful care transition rates and patient satisfaction, with qualitative interviews to gather insights on the experience of various stakeholders, while ethics approval has been secured for the study.
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Aim: To co-create parental presence practice recommendations across Canadian NICUs during pandemics caused by respiratory pathogens such as COVID-19.

Methods: Recommendations were developed through evidence, context, Delphi and Values and Preferences methods. For Delphi 1 and 2, participants rated 50 items and 20 items respectively on a scale from 1 (very low importance) to 5 (very high).

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Article Synopsis
  • The study explores how social networks influence knowledge translation (KT) in child development and rehabilitation (CD&R) in Canada, focusing on the interactions among families, health care providers, KT support personnel, and researchers.
  • Using social network analysis (SNA), the research aims to map and quantify these KT networks, identify barriers and facilitators in connections, and gather participant perspectives.
  • The methodology includes surveys and interviews to gather data, followed by intervention mapping and a Delphi process to develop recommendations for enhancing KT capacity within and among the groups involved.
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Background: Children with disability face long wait times for rehabilitation services. Before the COVID-19 pandemic, telehealth adoption was low across pediatric rehabilitation. Owing to the COVID-19 pandemic restrictions, pediatric therapists were asked to rapidly shift to telehealth, often with minimal training.

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Aim: Frayme is a Canadian-based international network designed to accelerate the adoption and scaling up of integrated youth services (IYS). This is done through the synthesis of evidence from a variety of sources and a commitment to integrated knowledge mobilization (KMb) to inform research policy and practice. Frayme is utilizing innovative approaches to stakeholder engagement (youth, families, policy makers, funders, researchers and practitioners) and KMb in order to co-design system change.

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Background: The ultimate goal of knowledge translation and exchange (KTE) activities is to facilitate incorporation of research knowledge into program and policy development decision making. Evidence-informed decision making involves translation of the best available evidence from a systematically collected, appraised, and analyzed body of knowledge. Knowledge management (KM) is emerging as a key factor contributing to the realization of evidence-informed public health decision making.

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Background: Evidence-informed decision making is accepted in Canada and worldwide as necessary for the provision of effective health services. This process involves: 1) clearly articulating a practice-based issue; 2) searching for and accessing relevant evidence; 3) appraising methodological rigor and choosing the most synthesized evidence of the highest quality and relevance to the practice issue and setting that is available; and 4) extracting, interpreting, and translating knowledge, in light of the local context and resources, into practice, program and policy decisions. While the public health sector in Canada is working toward evidence-informed decision making, considerable barriers, including efficient access to synthesized resources, exist.

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Context: Significant resources and time are invested in the production of research knowledge. The primary objective of this randomized controlled trial was to evaluate the effectiveness of three knowledge translation and exchange strategies in the incorporation of research evidence into public health policies and programs.

Methods: This trial was conducted with a national sample of public health departments in Canada from 2004 to 2006.

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Background: A knowledge broker (KB) is a popular knowledge translation and exchange (KTE) strategy emerging in Canada to promote interaction between researchers and end users, as well as to develop capacity for evidence-informed decision making. A KB provides a link between research producers and end users by developing a mutual understanding of goals and cultures, collaborates with end users to identify issues and problems for which solutions are required, and facilitates the identification, access, assessment, interpretation, and translation of research evidence into local policy and practice. Knowledge-brokering can be carried out by individuals, groups and/or organizations, as well as entire countries.

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Background: The World Health Organization estimates that 1.9 million deaths worldwide are attributable to physical inactivity. Chronic diseases associated with physical inactivity include cancer, diabetes and coronary heart disease.

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