Publications by authors named "Paula Prendeville"
Res Dev Disabil
August 2024
Article Synopsis
- - The study explores the experiences of parents raising children with Ehlers-Danlos Syndrome (EDS), highlighting the challenges and psychosocial impacts on family life.
- - Four parents were interviewed to identify key themes, including difficulties associated with hypermobile EDS, interactions with healthcare professionals, and managing daily life with the condition.
- - The research emphasizes the need for greater awareness and support from healthcare and educational professionals, and it calls attention to the importance of advocacy skills for parents of children with EDS.
