Publications by authors named "Paula H Lomas"
Article Synopsis
- A national survey was conducted to assess perspectives on cystic fibrosis (CF) care, focusing on potential adjustments to the care model to better meet patient needs.
- Results showed that while in-person visits are important, patients in stable health favored reducing the frequency of these visits, especially among younger patients on modulators.
- Support for integrating telehealth and enhancing communication between CF teams and other medical providers was emphasized, indicating a need for adaptable care strategies tailored to individual patient circumstances.
Objective: A survey was conducted to estimate how many adult patients with cystic fibrosis who receive care at centers accredited by the Cystic Fibrosis Foundation (CFF) also have biological children with the disease.
Methods: A six-item questionnaire was sent to 144 CFF-accredited care centers and satellites. After one month, a reminder e-mail was sent to the nonresponding centers.