Current and ideal living arrangements and supports for Canadian adults with fetal alcohol spectrum disorder: Part II-Perspectives from caregivers.

Background: Caregivers supporting adults with fetal alcohol spectrum disorder (FASD) report concerns regarding living arrangements and services for their adult children with FASD. Best practices for living support for adults with FASD are under-researched, and few studies have explored the experiences of caregivers whose children are adults. This study examined the perspectives of caregivers who support adults (18+) with FASD regarding: (1) current ways adults with FASD are supported with daily life activities; and (2) ideal future living arrangements and supports.

Current and ideal living arrangements and supports for Canadian adults with fetal alcohol spectrum disorder (FASD)-Part I: Perspectives from adults with FASD.

Background: Adults with fetal alcohol spectrum disorder (FASD) can thrive with lifelong support in daily living activities. Previous research examining living support for adults with FASD has heavily relied on caregiver reports rather than lived experiences, which can undermine opportunities for self-determination. In this study, we examined the perspectives of adults with FASD to better understand: (1) the ways in which they are supported with daily life activities; and (2) their ideal future living arrangements and supports.

All in the Family: Living With ADNP Syndrome.

Purpose: The overarching purpose of this research was to examine the experiences of 1 family living with a child with Helsmoortel-Van Der Aa syndrome or activity-dependent neuroprotective protein (ADNP) syndrome.

Design: A retrospective qualitative design was used for this study.

Methods: Two primary caregivers for a 5-year-old child with ADNP syndrome completed background questionnaires to provide context for semistructured interviews.

"Sometimes Life Throws You a Curve Ball": The Lived Experiences of an Individual With Early-Onset Alzheimer's Disease and His Family.

Introduction: Individuals with early-onset Alzheimer's disease face many challenges and barriers older adults with late-onset Alzheimer's do not. Unfortunately, information about early-onset Alzheimer's disease is in its infancy stage in comparison with late-onset Alzheimer's.

Purpose/aims: The purpose of this study was to examine the lived experiences of a 54-year-old man with early-onset Alzheimer's disease and his family (wife, sister, and mother) to understand the effects on the family unit.

"There Is No Before Cancer… There Is Only Cancer." Perceived Late Effects of Pediatric Cancer on Survivors.

Background: Although "late effects" connotes experiencing effects later in life, they can emerge immediately after active treatment. The effects that survivors experience have been reported but rarely from the point of view of the survivors regarding their life after treatment.

Objective: To examine the perceived late effects of pediatric cancer on survivors and their self-identified primary support persons in order to understand the multifaceted nature of living after a pediatric cancer diagnosis.

Scoping Review: Physical Activity and Social Functioning in Young People With Autism Spectrum Disorder.

Autism Spectrum Disorder (ASD) affects ~1 in 59 people in North America and diagnoses continue to rise (Center for Disease Control and Prevention, 2018). Unfortunately, the exact cause of ASD is unknown and therapy remains the primary means of intervention. People with ASD experience social and behavioral deficits associated with the disorder, which affect all aspects of life such as academics, relationships, and physical activity.

Having a Sibling with ASD: Perspectives of Siblings and Their Parents.

The overall purpose of this research was to explore the experiences of families living with a child with autism spectrum disorder (ASD). This paper reports the experiences of siblings of children with ASD, from the perspective of both siblings and parents. Using a phenomenological case study design, participants completed face sheets to provide context for one-on-one, semi-structured interviews, which were transcribed verbatim, and verified via member checks.

Examining the Perceived Effects of an Adult Day Program for Individuals With Dementia and Their Caregivers: A Qualitative Investigation.

Background: Currently 564 000 Canadians are living with dementia, and this number is expected to rise significantly in the next 15 years. Many individuals with dementia use adult day programs; however, contradictory evidence exists as to the effects that adult day programs have on individuals with dementia and their caregivers.

Purpose/aims: The purpose of this study was to examine the perceived effects that an adult day program had on individuals with dementia and their caregivers, from the perspective of care providers at an adult day program.

The Balancing Act: Mothers' Experiences of Providing Care to Their Children With Cancer.

The effect of pediatric cancer and its treatment are overwhelming-these effects are multifaceted and felt by the entire family unit throughout the diagnosis and treatment process. Children experience a plethora of effects as a result of the treatment process; however, it is imperative to remember that a pediatric cancer diagnosis affects parents physically, emotionally, and psychologically as well. While much of the pediatric cancer treatment occurs at the hospital or in clinics, parents are often faced with additional caregiving responsibilities at home, and in many cases, it is mothers who provide care to their children, while also attempting to care for the siblings of their ill children.

Taking Lemons and Making Lemonade: Posttraumatic Growth From Pediatric Cancer.

Purpose: The purpose of this study was to examine the lived experiences of the perceived long-term effects of pediatric cancer on adult survivors and whether these effects had bearing on their primary support persons.

Design: This work was guided by van Manen's "new" interpretive phenomenology.

Methods: Ten survivors of pediatric cancer (aged 21-28 years) and 9 of their support persons (aged 23-73 years) were recruited.

A Qualitative Investigation of the Self-Perceived Health Behavior Changes in Seniors After Their Transitions Into a Retirement Home.

Purpose/aims: It is important for seniors to engage in positive health behaviors to reduce the incidence of health-related consequences associated with aging. The purpose of this research study was to examine self-perceived changes in physical activity, nutrition, and alcohol consumption behaviors of seniors living in a retirement home through consideration of previous behaviors and self-perceptions of behavior changes.

Design: A qualitative research design was used for this study.

"It Just Is What It Is": The Positive and Negative Effects of Living With Inflammatory Bowel Disease and Irritable Bowel Syndrome.

Purpose: This study aimed to explore the lived experiences of women diagnosed with inflammatory bowel disease and/or irritable bowel syndrome enrolled in postsecondary education.

Methods: Nine women aged 18 to 26 years participated in this study. Data collection consisted of an informed consent form, a background questionnaire, and a semistructured one-on-one interview.

Who is a survivor? Perceptions from individuals who experienced pediatric cancer and their primary support persons.

Purpose: The purpose of this research was to examine the lived experiences of individuals who had cancer as children, as well as lived experiences of their current primary support persons.

Methods: Based on van Manen's "new" interpretive phenomenology, interviews were conducted with ten pediatric cancer survivors and nine of their support persons to gain a more holistic understanding of the pediatric cancer experiences of children and their families.

Results: Four themes emerged from the data; however, only the topic of the use of the term "survivor" and identification with the term will be discussed.

"It Changed Everything. And Not All in a Bad Way": Reflections of Pediatric Cancer Experiences.

Pediatric cancer, otherwise known as childhood cancer, is devastating to both children and their families. All individuals in a family are often physically, psychologically, and socially affected. Using the qualitative theoretical orientation of interpretive phenomenology, interviews were conducted with 10 pediatric cancer survivors and 9 of their support persons to gain a more holistic understanding of the pediatric cancer experiences of children and their families.

"One Flare at a Time": Adaptive and Maladaptive Behaviors of Women Coping With Inflammatory Bowel Disease and Irritable Bowel Syndrome.

Purpose: The purpose of this investigation is to study the lived experiences of female postsecondary students diagnosed with inflammatory bowel disease and/or irritable bowel syndrome.

Methods: Nine women between the ages of 18 and 26 years were recruited to participate in this study. Participants completed an informed consent form and background questionnaire before completing a semi-structured one-on-one interview.

Raising a child with special needs: the perspective of caregivers.

Purpose: Among Canadian children 14 years or younger, an estimated 202 350 (3.7%) are currently diagnosed with a disability. Because of the amount of care and attention children with disabilities require, parents of these children may also experience tribulations.

Balancing my disease: women's perspectives of living with inflammatory bowel disease.

Aims And Objectives: The purpose of this research was to examine the lived experiences of women with inflammatory bowel disease, by specifically exploring their management of their illness after diagnosis.

Background: Inflammatory bowel disease is a chronic autoimmune disease that has no known cause or cure. It is composed of two types of conditions: Crohn's disease and Ulcerative Colitis which have similar signs and symptoms, but have distinct physiological properties.

Data sharing between home care professionals: a feasibility study using the RAI Home Care instrument.

Background: Across Ontario, home care professionals collect standardized information on each client using the Resident Assessment for Home Care (RAI-HC). However, this information is not consistently shared with those professionals who provide services in the client's home. In this pilot study, we examined the feasibility of sharing data, from the RAI-HC, between care coordinators and service providers.

The costs of caring for a child with an autism spectrum disorder.

Background: The primary purpose of this exploratory autism research was to examine the lived experiences of female primary caregivers of children with an autism spectrum disorder (ASD).

Methods: Specifically the costs and benefits of the primary caregivers' experiences were examined through semi-structured one-one-one interviews. The specific focus of this paper was to examine the costs of caring for a child with an ASD, whereby costs did not refer solely to monetary costs, but were related to all aspects of the caregivers' lives.

The role of medications in predicting activity restriction due to a fear of falling.

Objective: To examine the role of medication use and other factors in predicting activity restriction due to a fear of falling (AR/FF).

Methods: Older adults were assessed twice with the interRAI Community Health Assessment and the Berg Balance Scale (BBS). The main outcome was limiting going outdoors due to an AR/FF.

Risk factors for restriction in activity associated with fear of falling among seniors within the community.

Background: Despite the significance of falling, fear of falling may represent a greater pervasive concern to the health of seniors. Activity restriction, resulting from fear of falling, which may or may not develop after a fall, may lead to balance deterioration, functional decline, anxiety or reductions in social/leisure/physical activity opportunities, and, consequently, compromised quality of life and health.

Methods: The purpose of this research was to determine the risk factors for activity restriction resulting from fear of falling among community-based seniors using an early version of the interRAI Community Health Assessment (interRAI CHA).

My child has cancer: finding the silver lining in every mother's nightmare.

Having a child with cancer is one of the most taxing experiences a family can endure. With that in mind, the primary objective of this research was to explore the lived experiences of mothers of children with pediatric cancer during diagnosis, treatment, and the period thereafter. The specific purpose of this article however, was to examine the benefits or positives that emerged from the experience.

My child has cancer: the costs of mothers' experiences of having a child with pediatric cancer.

Background: The primary objective of this exploratory research was to examine the lived experiences of female caregivers of children with cancer during diagnosis, treatment and the period thereafter. The specific purpose of this article was to examine the various costs associated with caring for a child with pediatric cancer.

Materials And Methods: Interviews were completed with nine mothers of children who had been treated for pediatric cancer.

How do I cope? Factors affecting mothers' abilities to cope with pediatric cancer.

The overall objective of this exploratory research was to examine the lived experiences of female caregivers of children with cancer during diagnosis, treatment, and the period thereafter. Specifically, the authors examined factors that affected mothers' abilities to cope with a diagnosis of cancer. The interviews were completed with 9 mothers of children who had been treated for pediatric cancer, in addition to 3 health care workers who provided care for families with children with cancer.

Risk factors for falling among community-based seniors.

Background: Falling constitutes a significant risk to the health and well-being of seniors. Although a number of risk factors have been established within the literature for falling, limited work has differentiated risk factors for 1-time versus recurrent or multiple fallers.

Methods: The purpose of this research was to examine 2 relationships: (1) the risk factors for nonfallers versus fallers (1+ falls); and (2) the risk factors for nonfallers/1-time fallers versus multiple fallers (2+ falls).