Survivorship outcomes for critically ill patients in Australia and New Zealand: A scoping review.

Introduction: Impairments after critical illness, termed the post-intensive care syndrome, are an increasing focus of research in Australasia. However, this research is yet to be cohesively synthesised and/or summarised.

Objective: The aim of this scoping review was to explore patient outcomes of survivorship research, identify measures, methodologies, and designs, and explore the reported findings in Australasia.

Measuring memory: A survey of neuropsychological practice amongst New Zealand psychologists.

This study sought to explore patterns of memory assessment in neuropsychological practice within New Zealand (NZ), to compare it to that previously described in Europe, North America and Australia, and to consider the implications for neuropsychology training in NZ. 80 NZ-registered psychologists completed an online survey asking them how frequently they utilized 50 commonly used tests of memory. Participants were also asked about their main areas of specialty, work context and demographic information.

What are the long-term outcomes for New Zealand survivors of critical illness?

The COVID-19 pandemic has drawn considerable attention to the survival journey and recovery of patients post critical illness. A decade ago, the Society of Critical Care Medicine described the prolonged adverse health effects after a critical illness as the "post intensive care syndrome" (PICS). Evidence is emerging from Australia around the impact critical illness has on disability, mental health, cognitive function and health-related quality of life for patients this side of the world.

Correction: Survivorship of Patients After Long Intensive Care Stay With Exploration and Experience in a New Zealand Cohort (SPLIT ENZ): Protocol for a Mixed Methods Study.

[This corrects the article DOI: 10.2196/35936.].

Survivorship of Patients After Long Intensive Care Stay With Exploration and Experience in a New Zealand Cohort (SPLIT ENZ): Protocol for a Mixed Methods Study.

Background: Post Intensive Care Syndrome (PICS) was defined by the Society of Critical Care Medicine in 2012 with subsequent international research highlighting poor long-term outcomes; reduced quality of life; and impairments, for survivors of critical illness. To date, there has been no published research on the long-term outcomes of survivors of critical illness in New Zealand.

Objective: The aim of this study is to explore long-term outcomes after critical illness in New Zealand.

Psychological flexibility in mild traumatic brain injury: an evaluation of measures.

Primary Objective: In this study, we examined the psychometric properties of measures of psychological flexibility in a mild traumatic brain injury (mTBI) sample.

Method And Procedures: Adults who sustained a mTBI (n = 112) completed the Acceptance and Action Questionnaire - Acquired Brain Injury reactive avoidance subscale (AAQ-ABI (RA). Exploratory factor analysis and Rasch analysis were conducted to evaluate the facture structure, dimensionality, and differential item functioning.

Factors Influencing the Use of Psychotropic Medication for Challenging Behaviour in the United Kingdom: A Q Method Investigation.

Objectives: The use of pharmacological interventions to manage challenging behaviour displayed by adults with intellectual disabilities remains controversial, with current clinical guidelines in the United Kingdom advocating the use of less invasive psychological interventions. This exploratory study aimed to discover what views and beliefs are held by a sample of NHS professionals who provided care and treatment to adults with learning disabilities, about the factors that are influential in the clinical decision-making process, surrounding the prescription of psychotropic medication, to manage challenging behaviour.

Methods: Q methodology was used to elucidate the factors considered influential in the clinical decision-making process, surrounding the prescription of medication to manage challenging behaviour.

Anxiety in Asperger's syndrome: Assessment in real time.

Anxiety is a major problem for many people with Asperger's syndrome who may have qualitatively different fears from a non-Asperger's syndrome population. Research has relied on measures developed for non-Asperger's syndrome populations that require reporting past experiences of anxiety, which may confound assessment in people with Asperger's syndrome due to problems with autobiographical memory as are often reported in this group.Experience sampling methodology was used to record real-time everyday experiences in 20 adults with Asperger's syndrome and 20 neurotypical adults.

I Collect Therefore I am--Autonoetic Consciousness and Hoarding in Asperger Syndrome.

Unlabelled: A growing number of studies have highlighted impairments in the ability of individuals with autism spectrum disorders to recall specific, personally experienced material. These difficulties have been related to underlying problems with autonoetic consciousness, namely the subjective awareness of one's own existence in subjective time. The current paper describes the manifestation of these difficulties in three individuals diagnosed with Asperger syndrome.

Asperger through the looking glass: an exploratory study of self-understanding in people with Asperger's syndrome.

Hobson (Autism and the development of mind. Lawrence Erlbaum, Hove, UK 1993) has proposed that the cognitive and linguistic disabilities that characterise autism result from abnormalities in inter-subjective engagement during infancy, which in turn results in impaired reflective self-awareness. The aim of the present study was to test Hobson's hypothesis by examining self-understanding in Asperger's syndrome (AS) using Damon and Hart's (Self-understanding in childhood and adolescence.

Parents with learning disabilities: perceived incidence and needs.

Recent literature and government guidance has highlighted the rights of parents with leaming disabilities and role of services in meeting their needs. In the present study, three focus groups were conducted involving 35 members of community health visiting teams in order to identify estimated incidence and needs of parents with learning disabilities and the needs of services in supporting them. The health visiting teams identified clinically significant numbers of parents with learning disabilities and--through qualitative focus group discussion--suggested a significant need for intervention and support for these parents, greater resources and knowledge within health visiting services, and improved interagency co-ordination and communication.

The not guilty verdict: psychological reactions to a diagnosis of Asperger syndrome in adulthood.

Asperger syndrome is a relatively new diagnostic classification. A number of factors make receiving a diagnosis of Asperger syndrome in adulthood a unique experience. This study used a phenomenological approach to examine the experiences of 10 adults receiving such a diagnosis.

A qualitative evaluation of patient experiences when diagnosed with oral cancer recurrence.

Loco-regional recurrence after radical primary treatment of oral cancer is associated with poor prognosis and major patient and career distress. The patient's psychosocial response to recurrence is underreported in the literature. This is one of the few papers to address in detail this stage in a patient's cancer journey.

Post-traumatic stress disorder-related symptoms in relatives of patients following intensive care.

Objective: To evaluate the effectiveness of the provision of information in the form of a rehabilitation program following critical illness in reducing psychological distress in the patients' close family.

Design: Randomised controlled trial, blind at follow-up with final assessment at 6 months.

Setting: Two district general hospitals and one teaching hospital.

Rehabilitation after critical illness: a randomized, controlled trial.

Objective: To evaluate the effectiveness of a rehabilitation program following critical illness to aid physical and psychological recovery.

Design: Randomized controlled trial, blind at follow-up with final assessment at 6 months.

Setting: Two district general hospitals and one teaching hospital.

The impact of current media events on hallucinatory content: the experience of the intensive care unit (ICU) patient.

Objectives: To investigate the influence of current media events on hallucinatory content in ICU patients.

Design And Methods: Patients were interviewed over a one-year period, and their descriptions of hallucinatory experiences, together with weekly media stories, were assessed for themes of war.

Results: Media coverage for war-related stories rose significantly during the period of war in Kosovo (24/3/99-20/6/99).