The first national pediatric immune thrombocytopenia registry in Iran: research protocol and preliminary study results.

Background: Disease registries are comprehensive databases that record detailed information on patients diagnosed with specific conditions, providing valuable insights into their diagnosis, treatment, and outcomes. This study aims to describe the pilot phase of the national pediatric Immune Thrombocytopenia(ITP) registry (NPITP) in Iran, serving as the inaugural interpretive report.

Methods: This patient-centered software system was implemented as a national program across multiple pediatric centers in Iran.