Publications by authors named "Pamela Tuley"
Article Synopsis
- - A multidisciplinary committee created guidelines for managing CRMS/CFSPID, developing 24 key questions based on feedback from patients and clinicians, existing recommendations, and expert input.
- - The committee conducted a systematic review and made 30 recommendations, most of which had moderate to low certainty due to the lack of high-quality evidence, primarily relying on case studies rather than randomized trials.
- - Key guidelines include thorough genetic evaluation, repeat sweat testing until age 8, limited medication use with shared decision-making, and improved communication about social health factors, alongside a call for future research on medications and lung disease monitoring.
Objective: Cystic Fibrosis Foundation guidelines recommend annual diabetes screening by oral glucose tolerance test (OGTT) in pediatric patients with cystic fibrosis (CF) starting at the age of 10 years. Adherence to these guidelines proves to be challenging, and the nationwide screening rates are still considered suboptimal. The aim of this study was to assess and improve the screening rates at our large pediatric center.
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