Publications by authors named "Pamela Pour"
Article Synopsis
- The study looked into what challenges parents face when trying to get their child diagnosed and treated for juvenile localized scleroderma and systemic sclerosis, which are rare skin conditions.
- Many parents said a big problem was that doctors don’t know enough about these conditions, making it hard to get the right care.
- Even though most families had good education and income, they still faced issues like long wait times, balancing everyday life with healthcare needs, and finding reliable information about their child’s condition.