Publications by authors named "P Studenic"

Article Synopsis
  • - The study investigates how patients with rheumatic and musculoskeletal diseases (RMD) self-monitor their conditions and their willingness to use digital health applications (DHAs) for better self-management.
  • - Results from a survey of 228 patients showed that while 78% were willing to use DHAs, 64% rarely or never tracked their symptoms, often due to a stable condition or perceived lack of value.
  • - The research highlights the need for improved patient engagement strategies and passive monitoring techniques in the development of DHAs to enhance effective disease self-care.
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Rheumatoid arthritis (RA) is one of the most common rheumatic conditions, impacting quality of life on several domains. Major breakthroughs have been achieved over the past three decades in the management benefitting the patients' lives. With increasing as well as novel treatment options, clinical registries have been established and continuously evolve to portray patient characteristics, monitor disease activity of RA, effectiveness and safety of the novel compounds.

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Rheumatic and Musculoskeletal Diseases (RMDs) are very common and can negatively impact patients' quality of life. The current care of patients with RMDs is episodic, based on a few yearly doctor visits, which may not provide an adequate picture of the patient's condition. Researchers have hypothesized that RMDs could be passively monitored using smartphones or sensors, however, there are no datasets to support this development.

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Background: Since the publication of the 2011 European Alliance of Associations for Rheumatology (EULAR) recommendations for patient research partner (PRP) involvement in rheumatology research, the role of PRPs has evolved considerably. Therefore, an update of the 2011 recommendations was deemed necessary.

Methods: In accordance with the EULAR Standardised Operational Procedures, a task force comprising 13 researchers, 2 health professionals and 10 PRPs was convened.

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