Publications by authors named "P F NEW"
Article Synopsis
- The study aimed to analyze how damage from idiopathic inflammatory myopathies (IIM) changes over time and its relationship with different autoantibody subgroups using data from a large patient registry.
- Researchers examined data from 757 patients classified by their autoantibody profiles and found that damage increased over the years, with varying rates depending on the type of autoantibody present.
- Results indicated that patients with dermatomyositis-specific autoantibodies exhibited less damage per year, while those with anti-PM/Scl autoantibodies experienced greater damage, highlighting significant differences among the groups over a five-year follow-up.
Study Design: International Classification of Functioning, Disability and Health (ICF) linking study.
Objective: Analyze cognitive interview data using the ICF as an analytic framework, to examine aspects of social life relevant to quality of life (QoL) according to people with spinal cord injury or disease (SCI/D). This study builds upon results of an international study about the cross-cultural validity of the International SCI QoL Basic Data Set (QoL-BDS).
Context/objective: Examine the sensitivity of the International Spinal Cord Injury Quality of Life Basic Data Set V2.0 (QoL-BDS V2.0) to reflect changes in mobility and secondary health conditions (SHCs) between inpatient rehabilitation and one-year follow-up.
View Article and Find Full Text PDFStudy Design: Consensus based on the literature.
Objective: Create an International Spinal Cord Injury (SCI) Socio-Demographic Basic Data Set (Version 1.0).
Objective: Clinical trials assessing systemic sclerosis (SSc)-related digital ulcers have been hampered by a lack of reliable outcome measures of healing. Our objective was to assess the feasibility of patients collecting high-quality mobile phone images of their digital lesions as a first step in developing a smartphone-based outcome measure.
Methods: Patients with SSc-related digital (finger) lesions photographed one or more lesions each day for 30 days using their smartphone and uploaded the images to a secure Dropbox folder.