Mainstream ICT Can Support Children and Adolescents with ADHD and/or Autism in Their Everyday Activities.

This exploratory case study investigated how ICT can support children with ADHD and/or autism and their families in their daily activities. We focus in particular on the suitability of mainstream technology for such support. Two cases are presented, and implications for practice are discussed.

Collection of patient-reported outcomes;--text messages on mobile phones provide valid scores and high response rates.

Background: Patients with inflammatory rheumatic diseases have expressed a need for more frequent measurement of relevant outcomes, due to the variations in their symptoms during the day and from day to day. At present, patient-reported outcomes are extensively collected with questionnaires completed with pen and paper. However, as a measurement tool in frequent data collection the questionnaires are impractical.

Daily health status registration (patient diary) in patients with rheumatoid arthritis: a comparison between personal digital assistant and paper-pencil format.

Objective: The patient perspective workshops at the Outcome Measures in Rheumatology Clinical Trials have included daily measures of health status (patient diary) and use of electronic tools for data collection in the research agenda. The objective of this study was to compare daily and weekly registrations of self-reported health status measures between personal digital assistant (PDA) and paper-pencil (PP) format regarding scores, variation, and feasibility.

Methods: Thirty-eight patients with stable rheumatoid arthritis recorded their health status during 84 days in a repeated crossover design, using PDA or PP format during four 21-day periods.

From childhood to adult life with juvenile idiopathic arthritis (JIA): a pilot study.

Purpose: To explore the experiences of the health service provision in the transition process from childhood to adult life from the perspective of young patients with juvenile idiopathic arthritis (JIA) and health professionals working in this field.

Method: Two groups of young persons with JIA and two groups of health professionals were interviewed in focus groups. The data were analysed according to approved guidelines for qualitative analysis.

Despite technical problems personal digital assistants outperform pen and paper when collecting patient diary data.

Objectives: To assess how personal digital assistants (PDAs) perform as collection tools of patient-reported outcomes in clinical research compared to pen and paper (P&P) diaries in terms of feasibility, protocol compliance, data accuracy, and subject acceptability.

Study Design And Setting: A systematic review of randomized and quasi-randomized controlled trials comparing the PDA and P&P methods in a health diary context involving repeated measures in persons with chronic health problems.

Results: Nine studies were included.