There is a reported high prevalence of anxiety in people with autism spectrum disorder. This mini review appraises existing research investigating heart rate variability biofeedback to help manage symptoms of anxiety in people with autism spectrum disorder. A thorough search of electronic databases was conducted to find relevant literature.
View Article and Find Full Text PDFHealth Qual Life Outcomes
April 2022
Background: There are many methods available for measuring social support and quality of life (QoL) of adolescents, of these, the KIDSCREEN tools are most widely used. Thus, we aimed to translate and validate the KIDSCREEN-27 scale for the usage among adolescents aged between 10 and 19 years old in Slovenia.
Methods: A cross-sectional study was conducted among 2852 adolescents in primary and secondary school from November 2019 to January 2020 in Slovenia.
Challenges exist in respect of people with intellectual disabilities who, with the increasing life expectancy, have a growing risk of age-related degenerative conditions. Changes in bone health are associated with increasing age and the bone health of people who have intellectual disabilities is well documented in the literature as being poor in comparison to the general population. A heel scan clinic was set up in an intellectual disability service as a service improvement initiative.
View Article and Find Full Text PDFBackground: Population-based data are presented on the nature of dying in intellectual disability services.
Methods: A retrospective survey was conducted over 18 months with a sample of UK-based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population.
Aims: This systematic review aimed to identify school-based interventions for ensuring mental health and well-being of adolescents, synthesize existing interventions, and summarize the quality of identified studies.
Design: A systematic review, analysis, and synthesis were performed.
Data Sources: Search was performed in Cochrane Library, PsychARTICLES, Web of Science, CINAHL, and Medline.
BMJ Support Palliat Care
December 2020
Background: Adults with intellectual disability (ID) experience inequality in access to healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at the end of life and how these compare with the general population are unknown.
Aim: To describe the end-of-life care outcomes for adults with ID living in residential care in the UK using the VOICES-SF questionnaire and compare these with the general population.
Mental well-being is a key for successful and productive living of each individual. An imbalance can occur due to various stressors and environmental factors. Due to academic pressures, distance from home and financial burden, nursing students often meet with mental health problems.
View Article and Find Full Text PDFAim And Objective: To explore preregistration nursing students' caring attributes development through a person-centred focused curriculum.
Background: Developing caring attributes in student nurses to the point of registration has historically been challenging. Globally, curricula have not yet demonstrated the ability to sustain and develop caring attributes in this population, despite its centrality to practice.
Aims And Objectives: To explore the views of nurses towards child health research and to identify factors influencing their willingness to facilitate it in practice.
Background: Child health research in clinical practice is increasing throughout the UK. Nurses and midwives facilitate access to patients, enact research study protocols and have a critical role in parental decisions to enrol children into research studies.
Background: The lack of access to good quality palliative care for people with intellectual disabilities is highlighted in the international literature. In response, more partnership practice in end-of-life care is proposed.
Aim: This study aimed to develop a best practice model to guide and promote partnership practice between specialist palliative care and intellectual disability services.
Background And Objectives: Evidence from European and American studies indicates limited referrals of people with learning (intellectual) disabilities to palliative care services. Although professionals' perceptions of their training needs in this area have been studied, the perceptions of people with learning disabilities and family carers are not known. This study aimed to elicit the views of people with learning disabilities, and their family carers concerning palliative care, to inform healthcare professional education and training.
View Article and Find Full Text PDFThe aim of this study was to explore the views of parents and health professionals regarding informed decision making for antenatal screening for Down syndrome. This qualitative study was based on thematic analysis and conducted in England, where screening for Down syndrome is universally offered to all pregnant women. Four focus groups were held with pregnant women and/or their partners (n = 22), and another four groups were held with health professionals who offer antenatal screening (n = 22).
View Article and Find Full Text PDFAims And Objectives: To measure nurses' knowledge of blood transfusion in the United Arab Emirates.
Background: Blood transfusion is a fundamental aspect of nursing practice and nurses' knowledge of it is essential for safe practice. Yet little is known about their blood transfusion practice and the knowledge that underpins it.
Aims: The aim of this study was to document nurses' practice of red blood cells transfusion.
Background: In the United Arab Emirates hospitals, nurses are responsible for the administration of blood transfusions. The safety and effectiveness of the transfusion process is dependent, among others, on the knowledge and skills of nurses who perform the procedure.
J Intellect Disabil
September 2009
The diffusion of antenatal screening programmes for Down syndrome has triggered much discussion about their powerful potential to enhance pregnant women's autonomy and reproductive choices. Simultaneously, considerable debate has been engendered by concerns that such programmes may directly contribute to the emergence of new and complex ethical, legal and social dilemmas for women. Given such discussion and debate, an examination of women's decision-making within the context of antenatal screening for Down syndrome is timely.
View Article and Find Full Text PDFBackground: antenatal screening for fetal abnormalities is now offered to all pregnant women in many countries in Europe. Previous studies have shown that women and their partners may not make informed choices about screening.
Objectives: to investigate knowledge of screening in both prospective parents and professionals offering screening in England, and to identify the ways in which pregnant women and their partners could be supported to make informed decisions about antenatal screening.
J Intellect Disabil
September 2008