Publications by authors named "Olubukola Balogun"
Background: There is a growing interest in stroke genomics and neurobiobanking research in Africa. These raise several ethical issues, such as consent, re-use, data sharing, storage, and incidental result of biological samples. Despite the availability of ethical guidelines developed for research in Africa, there is paucity of information on how the research participants' perspectives could guide the research community on ethical issues in stroke genomics and neurobiobanking research.
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- The fields of stroke genomics, biobanking, and precision medicine are developing rapidly in sub-Saharan Africa, but ethical and social implications remain uncertain due to diverse cultural contexts.
- The African Neurobiobank for Precision Stroke Medicine-ELSI Project involves a collaborative effort across Ghana and Nigeria, focusing on building capacity through workshops with stakeholders to create and validate data collection instruments.
- Findings indicate that these workshops significantly improved participants' knowledge in genetic and genomic research, highlighted the need for culturally appropriate tools, and demonstrated that a developed mini-dictionary effectively enhanced understanding and engagement in genomic data collection.