Publications by authors named "Olorunyomi Olorunsogbon"
Background: There is a growing interest in stroke genomics and neurobiobanking research in Africa. These raise several ethical issues, such as consent, re-use, data sharing, storage, and incidental result of biological samples. Despite the availability of ethical guidelines developed for research in Africa, there is paucity of information on how the research participants' perspectives could guide the research community on ethical issues in stroke genomics and neurobiobanking research.
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- The study investigates the awareness and willingness to donate biological samples for neurobiobanking in Ghana and Nigeria, revealing low levels of knowledge about blood and brain donation among community members.
- About a third of respondents knew about blood donation, while only 18.8% were willing to donate their brain after death, primarily due to cultural beliefs and lack of information.
- The research highlights the importance of targeted public education regarding neurobiobanking and informed consent in sub-Saharan Africa, taking into account the region's sociocultural diversity.
Article Synopsis
- The fields of stroke genomics, biobanking, and precision medicine are developing rapidly in sub-Saharan Africa, but ethical and social implications remain uncertain due to diverse cultural contexts.
- The African Neurobiobank for Precision Stroke Medicine-ELSI Project involves a collaborative effort across Ghana and Nigeria, focusing on building capacity through workshops with stakeholders to create and validate data collection instruments.
- Findings indicate that these workshops significantly improved participants' knowledge in genetic and genomic research, highlighted the need for culturally appropriate tools, and demonstrated that a developed mini-dictionary effectively enhanced understanding and engagement in genomic data collection.
There is an increasing recognition of the importance of including benefit sharing in research programmes in order to ensure equitable and just distribution of the benefits arising from research. Whilst there are global efforts to promote benefit sharing when using non-human biological resources, benefit sharing plans and implementation do not yet feature prominently in research programmes, funding applications or requirements by ethics review boards. Whilst many research stakeholders may agree with the concept of benefit sharing, it can be difficult to operationalise benefit sharing within research programmes.
View Article and Find Full Text PDFBackground: Pandemics such as the current COVID-19 pandemic are often associated with heightened fear and significant adjustments in health behaviours.
Aim: This study aimed to assess perceived risk, anxiety and protective behaviours of the general public during the early phase of the coronavirus disease (COVID-19) pandemic in Nigeria.
Methods: An online cross-sectional study among 1197 respondents aged 18 years and above between 27 April to 16 May 2020.
Background: Religious and spiritual coping strategies is one of the possible tools that can be used to deal with stress and the negative consequences of life problems and illnesses. The study aims to assess religious coping in the time of the COVID-19 pandemic.
Methodology: It was an online survey.
Introduction: disparity between the demand for and the supply of organs for transplantation remains a major public health issue of global concern. This study evaluated the knowledge and determinants of willingness to donate organs among outpatient clinic attendees in a Nigerian teaching hospital.
Methods: a 43-item semi-structured interviewer-administered questionnaire was designed to assess awareness and willingness of individuals attending Neurology, Psychiatry and Geriatrics Outpatient clinics to donate bodily organs for transplantation.
The ethical, legal, and social implications (ELSI) of emerging neurobiobanks and data resources are unclear in an African scientific landscape with unique cultural, linguistic, and belief systems. The overarching goal of the African Neurobiobank for Precision Stroke Medicine-ELSI Project is to identify, examine, and develop novel approaches to address ELSI issues of biobanking and stroke genomic research in sub-Saharan Africa (SSA). To accomplish the goal we will (1) explore knowledge, attitude, perceptions, barriers, and facilitators influencing ELSI issues related to biobanking and stroke genomic research; (2) use information obtained to craft a community intervention program focused on ELSI issues; and (3) build capacity and careers related to genomics and biobanking for effective client/community engagement while enhancing regulatory, governance, and implementation competences in biobanking science in SSA.
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