Proposals for person-centred care in the COVID-19 era. Delphi study.

Background: In this COVID-19 era, we need to rethink the criteria used to measure the results of person-centred care strategies.

Objective: To identify priorities, and criteria that health services can use to pursue actually the goal of achieving person-centred care.

Design: Three-phase online qualitative study performed during May-July of 2020 using the Delphi technique.

Results of a Patient Reported Experience Measure (PREM) to measure the rare disease patients and caregivers experience: a Spanish cross-sectional study.

Objective: To measure the experience of the person having a rare disease in order to identify objectives for optimal care in the health care received by these patients.

Methods: A cross-sectional study was conducted in Spain involving patients associated with the Spanish Rare Diseases Federation [Federación Española de Enfermedades Raras] (FEDER). A modified version of the PREM IEXPAC [Instrumento para evaluar la Experiencia del Paciente Crónico] instrument was used (IEXPAC-rare-diseases).

The Measure of the Family Caregivers' Experience.

: Design and validate a measure of the experience of family caregivers with the integrated care that receive the persons they care for. : The new instrument for measuring the experience of caregivers is based on the Instrument to Evaluate the EXperience of PAtients with Chronic Diseases (acronym in Spanish: IEXPAC) scale instrument. With the qualitative technique of the discussion group, nine professionals and eight caregivers assessed the face validity of the instrument and they advised on issues to explore and the measuring scale to use.

[Development of an instrument for the assessment of chronic care models].

Objective: To present the context, aim and process of designing the Instrument for the Assessment of Chronic Care Models (Instrumento de Evaluación de Modelos de Atención ante la Cronicidad [IEMAC]), which was developed to make the conceptual framework of the chronic care model operational in the Spanish national health system.

Methods: The IEMAC was developed by a series of national experts with distinct profiles of expertise using qualitative research techniques. A matrix was built with the dimensions selected as basic for the new model.