A ski and adventure camp for young patients with severe forms of epidermolysis bullosa.

Background: The Dystrophic Epidermolysis Bullosa (EB) Research Association (DebRA) of New Zealand has run 3 adventure camps specifically geared to the unique and specific needs of teenagers and young adults with EB.

Objectives: We sought to describe how the 2007 winter camp was organized, funded, and run for teenagers and young adults with a range of EB severities.

Methods: Planning and fundraising by DebRA of New Zealand began 1 year before the camp.