Background: Black, Asian and minority ethnic (BAME) communities are disproportionately affected by inequalities in transplant services in the UK. There are some indications from pilot programmes that appeals for BAME organ donors may be more effectively communicated by employing grassroots, community-networking approaches, but such initiatives have not been adequately described or evaluated.
Methods: Lay individuals from BAME communities were trained as peer outreach workers.
Background: Kidney Research UK, have been working since 2001 to raise health awareness, fund and oversee research into kidney related issues disproportionately affecting the BAME communities in the UK. Almost 10 years ago, the charity initiated its Peer Educator model which uses the natural skills of lay people and patients to raise awareness in these communities.
Aims: This article will describe the work of the Charity in relation to patient and public engagement, describing the Peer Educator model and providing examples of how it has been used.
Chronic kidney disease (CKD) stages 3 to 5, affects 6-7% of the adult population and is an important risk factor for both advanced kidney disease and cardiovascular disease. This paper describes a quality improvement project that aimed to establish consistent implementation of best practice in people with stage 3-5 kidney disease who were managed in primary care. The intervention was a Care Bundle for CKD.
View Article and Find Full Text PDFBackground: This paper explores how a group of people with renal or other vascular conditions collaborated with renal practitioners in undertaking a quality improvement project, the aim of which was to reduce variation in care for people with Stages 3-4 chronic kidney disease.
Development And Role Of The Group: The patient advisory group supporting the project took a decisive and leading role in the creation of self-management materials and subsequent training for healthcare professionals and patients. The role of the patient advisory group was evaluated informally throughout the project.
Strict control of systolic blood pressure is known to slow progression of chronic kidney disease (CKD). Here we compared audit-based education (ABE) to guidelines and prompts or usual practice in lowering systolic blood pressure in people with CKD. This 2-year cluster randomized trial included 93 volunteer general practices randomized into three arms with 30 ABE practices, 32 with guidelines and prompts, and 31 usual practices.
View Article and Find Full Text PDFBackground: Chronic kidney disease (CKD) is a relatively newly recognised but common long-term condition affecting 5 to 10% of the population. Effective management of CKD, with emphasis on strict blood pressure (BP) control, reduces cardiovascular risk and slows the progression of CKD. There is currently an unprecedented rise in referral to specialist renal services, which are often located in tertiary centres, inconvenient for patients, and wasteful of resources.
View Article and Find Full Text PDFUnlabelled: Established renal failure as a complication of diabetes in 10 times greater in South Asians than in Caucasians. The objectives were: (1) to develop methods to increase community awareness and (2) to support general practices to improve chronic kidney disease (CKD) detection and management. The methods include: 1.
View Article and Find Full Text PDFChronic kidney disease (CKD) is a common, harmful, but treatable long term condition. An overview of CKD is provided in this article. Kidney Research UK, www.
View Article and Find Full Text PDFBr J Community Nurs
April 2008
Over 3 million people are affected by chronic kidney disease (CKD). Kidney Research UK, a national charity dedicated to research that will lead to better treatment and cures for kidney disease has developed the innovative and successful 'A better life through education and empowerment' (ABLE) programme which researches and raises awareness of the issues among 'at risk' groups and helps prevent or slow its progression. Initially the programme focused on the black and minority ethnic (BME) communities who are up to 5 times more likely to develop kidney failure than white caucasians.
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