Publications by authors named "Nancy Karpen"
Article Synopsis
- Alagille syndrome (ALGS) is a complex disorder primarily affecting the liver, and this study investigated the long-term liver health of affected children through a large, international sample.
- The study included 1,433 children diagnosed with ALGS across 67 medical centers in 29 countries, revealing that only about 40% reached adulthood with their native liver intact.
- Elevated total bilirubin levels in infants are linked to significantly increased risks of developing severe liver-related problems, which can help doctors in making treatment decisions and evaluating therapies for ALGS patients.
