Publications by authors named "N Kamminga"

Background: Survivorship care plans (SCPs), ie, personalized health care plans for cancer survivors, can be used to support the growing group of melanoma survivors throughout their disease trajectory. However, implementation and effectiveness of SCPs are suboptimal and could benefit from the involvement of stakeholders in developing a user-centered design.

Objective: The aim of this study was to identify the ideal SCP for patients with melanoma in terms of functions and features to be included according to different stakeholders and to explore their underlying motives.

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  • This study assessed how well Large Language Models (LLMs) like ChatGPT and Gemini answered melanoma-related patient questions compared to established Dutch patient information resources (PIRs).
  • ChatGPT-3.5 had the highest accuracy, while Gemini excelled in completeness, personalization, and readability; however, the best LLMs still lagged behind PIRs in accuracy overall.
  • Despite LLMs showing promise for personalized responses, the study highlights the need for improvement in their accuracy and reproducibility before they can fully replace traditional PIRs.
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  • The study focuses on stage I and II melanoma survivors to understand their experiences and survivorship care needs after treatment, highlighting the lack of research in this area despite the rising incidence of localized melanoma.
  • The qualitative research involved 18 survivors divided into focus groups, revealing that they experienced significant emotional and physical challenges after treatment, alongside a mix of relief and fear as they navigated life post-diagnosis.
  • Survivors emphasized the need for tailored information, accessible resources, and ongoing, patient-centered support to help them adjust and improve their quality of life after melanoma treatment.
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  • - The study at Erasmus Medical Center examined why less than half of patients and healthcare professionals (HCPs) utilize patient-reported outcomes measures (PROMs), aiming to identify factors that aid or hinder their adoption.
  • - A mixed-methods approach was used, incorporating interviews, focus groups, and questionnaires from various stakeholders including patients, HCPs, and medical students, which led to themes relevant to training, motivation, and reducing burdens related to PROMs.
  • - Findings highlighted that while providing digital tools and support is essential for PROM implementation, continuous efforts to engage and educate users are necessary for achieving successful adoption.
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